Aaron J. Goldenberg: search on Z-Library

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51

Duchenne Muscular Dystrophy Newborn Screening, a Case Study for Examining Ethical and Legal Issues for Pilots for Emerging Disorders: Considerations and Recommendations

Lloyd-Puryear, Michele, Crawford, Thomas, Brower, Amy, Stephenson, Kristin, Trotter, Tracy, Goldman, Edward, Goldenberg, Aaron, Howell, R., Kennedy, Annie, Watson, Michael

Journal:

International Journal of Neonatal Screening

Year:

2018

Language:

english

File:

PDF, 858 KB

english, 2018

52

Genomic Contextualism: Shifting the Rhetoric of Genetic Exceptionalism

Garrison, Nanibaa' A., Brothers, Kyle B., Goldenberg, Aaron J., Lynch, John A.

Journal:

American Journal of Bioethics

Year:

2019

File:

PDF, 692 KB

2019

53

Exploring prenatal genetic counselors' perceptions of abortion laws in restrictive states

Koenig, Shelby, Simi, Eve, Goldenberg, Aaron, Magasi, Susan, Wicklund, Catherine

Journal:

Journal of Genetic Counseling

Year:

2019

File:

PDF, 828 KB

2019

54

A Midline Mediastinal Parathyroid Cyst

Slonimsky, Guy, Baker, Aaron, Crist, Henry, Goldenberg, David

Journal:

Ear, Nose & Throat Journal

Year:

2018

Language:

english

File:

PDF, 3.18 MB

english, 2018

55

A Belmont Reboot: Building a Normative Foundation for Human Research in the 21st Century

Brothers, Kyle B., Rivera, Suzanne M., Cadigan, R. Jean, Sharp, Richard R., Goldenberg, Aaron J.

Journal:

The Journal of Law, Medicine & Ethics

Year:

2019

File:

PDF, 174 KB

2019

56

Considering Equity in Assessing Familial Benefit From the Return of Genomic Research Results

Goldenberg, Aaron J.

Journal:

Year:

2019

Language:

english

File:

PDF, 611 KB

english, 2019

57

A Newborn Screening Education Best Practices Framework: Development and Adoption

Evans, Adrianna, LeBlanc, Keri, Bonhomme, Natasha, Shone, Scott M., Gaviglio, Amy, Freedenberg, Debra, Penn, Jeremy, Johnson, Carol, Vogel, Beth, Dolan, Siobhan M., Goldenberg, Aaron J.

Journal:

International Journal of Neonatal Screening

Year:

2019

File:

PDF, 1.17 MB

2019

58

Comparison of Video, App, and Standard Consent Processes on Decision-Making for Biospecimen Research: A Randomized Controlled Trial

Rothwell, Erin, Johnson, Erin, Wong, Bob, Goldenberg, Aaron, Tarini, Beth A., Riches, Naomi, Stark, Louisa A., Pries, Christina, Langbo, Carrie, Langen, Elizabeth, Botkin, Jeffrey

Journal:

Journal of Empirical Research on Human Research Ethics An International Journal

Year:

2020

File:

PDF, 267 KB

2020

59

The limited use of US residual newborn screening dried bloodspots for health disparity research

Riches, Naomi O., Johnson, Erin P., Frost, Caren J., Goldenberg, Aaron J., Rothwell, Erin

Journal:

Genetics in Medicine

Year:

2020

File:

PDF, 295 KB

2020

60

Online Pediatric Research: Addressing Consent, Assent, and Parental Permission

Brothers, Kyle B., Clayton, Ellen Wright, Goldenberg, Aaron J.

Journal:

The Journal of Law, Medicine & Ethics

Year:

2020

File:

PDF, 121 KB

2020

61

Analogies in Genomics Policymaking: Debates and Drawbacks

Lynch, John A., Goldenberg, Aaron J., Garrison, Nanibaaâ A., Brothers, Kyle B.

Journal:

The American Journal of Human Genetics

Year:

2020

File:

PDF, 99 KB

2020