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51

Double disadvantage: a case control study on health-related quality of life in children with sickle cell disease

Channa T Hijmans, Karin Fijnvandraat, Jaap Oosterlaan, Harriët Heijboer, Marjolein Peters, Martha A Grootenhuis

Journal:

Health and Quality of Life Outcomes

Year:

2010

Language:

english

File:

PDF, 318 KB

english, 2010

52

The Transfusion Alternatives Preoperatively in Sickle Cell Disease (TAPS) study: a randomised, controlled, multicentre clinical trial

Howard, Jo, Malfroy, Moira, Llewelyn, Charlotte, Choo, Louise, Hodge, Renate, Johnson, Tony, Purohit, Shilpi, Rees, David C, Tillyer, Louise, Walker, Isabeau, Fijnvandraat, Karin, Kirby-Allen, Melanie

Journal:

Year:

2013

Language:

english

File:

PDF, 171 KB

english, 2013

53

Bleeding Phenotype in Children with Moderate or Severe Von Willebrand Disease – Iatrogenic bleeding is the presenting symptom in 42% of the index cases

Yvonne Sanders, Karin Fijnvandraat…

Journal:

Tijdschrift voor Kindergeneeskunde

Year:

2013

Language:

english

File:

PDF, 51 KB

english, 2013

54

Markers of endothelial dysfunction differ between subphenotypes in children with sickle cell disease

van der Land, Veronica, Peters, Marjolein, Biemond, Bart J., Heijboer, Harriët, Harteveld, Cornelis L., Fijnvandraat, Karin

Journal:

Thrombosis Research

Year:

2013

Language:

english

File:

PDF, 330 KB

english, 2013

55

Neonatal thrombocytopenia: etiology, management and outcome

Gunnink, Suzanne F, Vlug, Roos, Fijnvandraat, Karin, van der Bom, Johanna G, Stanworth, Simon J, Lopriore, Enrico

Journal:

Expert Review of Hematology

Year:

2014

Language:

english

File:

PDF, 279 KB

english, 2014

56

Gynaecological and obstetric bleeding in moderate and severe von Willebrand disease

De Wee, E. M., Knol, H. M., Mauser-Bunschoten, E. P., van der Bom, J. G., Eikenboom, J. C. J., Fijnvandraat, K., De Goede-Bolder, A., Laros-van Gorkom, B., Ypma, P. F., Zweegman, S., Meijer, K., Leebe

Journal:

Thrombosis and Haemostasis

Year:

2011

Language:

english

File:

PDF, 219 KB

english, 2011

57

Reduced prevalence of arterial thrombosis in von Willebrand disease

Sanders, Y. V., Eikenboom, J., de Wee, E. M., van der Bom, J. G., Cnossen, M. H., Degenaar-Dujardin, M. E. L., Fijnvandraat, K., Kamphuisen, P. W., Laros-van Gorkom, B. A. P., Meijer, K., Mauser-Bunsc

Journal:

Journal of Thrombosis and Haemostasis

Year:

2013

Language:

english

File:

PDF, 113 KB

english, 2013

58

Frequency of the MTHFR C677T Polymorphism in Yemeni Children with Sickle Cell Disease

Al-Saqladi, Abdul-Wahab M., Harper, Greg, Delpisheh, Ali, Fijnvandraat, Karin, Bin-Gadeem, Hassan A., Brabin, Bernard J.

Journal:

Year:

2010

Language:

english

File:

PDF, 155 KB

english, 2010

59

The Fc gamma receptor IIa R131H polymorphism is associated with inhibitor development in severe hemophilia A

Eckhardt, C. L., Astermark, J., Nagelkerke, S. Q., Geissler, J., Tanck, M. W. T., Peters, M., Fijnvandraat, K., Kuijpers, T. W.

Journal:

Journal of Thrombosis and Haemostasis

Year:

2014

Language:

english

File:

PDF, 268 KB

english, 2014

60

Inhibitors - genetic and environmental factors

Lillicrap, D., Fijnvandraat, K., Santagostino, E.

Journal:

Year:

2014

Language:

english

File:

PDF, 116 KB

english, 2014

61

von Willebrand disease and aging: an evolving phenotype

Sanders, Y. V., Giezenaar, M. A., Laros-van Gorkom, B. A. P., Meijer, K., van der Bom, J. G., Cnossen, M. H., Nijziel, M. R., Ypma, P. F., Fijnvandraat, K., Eikenboom, J., Mauser-Bunschoten, E. P., Le

Journal:

Journal of Thrombosis and Haemostasis

Year:

2014

Language:

english

File:

PDF, 564 KB

english, 2014

62

Effect of von Willebrand factor on inhibitor eradication in patients with severe haemophilia A: a systematic review

van Velzen, Alice S., Peters, Marjolein, van der Bom, Johanna G., Fijnvandraat, Karin

Journal:

British Journal of Haematology

Year:

2014

Language:

english

File:

PDF, 898 KB

english, 2014

63

[IEEE 2008 First International Conference on Infrastructure Systems and Services: Building Networks for a Brighter Future (INFRA) - Rotterdam, Netherlands (2008.11.10-2008.11.12)] 2008 First International Conference on Infrastructure Systems and Services: Building Networks for a Brighter Future (INFRA) - How to deal with risk and uncertainty in the decision-making process on broadband roll out

Fijnvandraat, Marieke L.

Year:

2008

Language:

english

File:

PDF, 89 KB

english, 2008

64

Predicting the unpredictable: dealing with risk and uncertainty in broadband roll‐out

Fijnvandraat, Marieke, Bouwman, Harry

Journal:

Year:

2010

Language:

english

File:

PDF, 248 KB

english, 2010

65

Diagnostic dilemmas and results of treatment for chronic constipation.

Keuzenkamp-Jansen, C W, Fijnvandraat, C J, Kneepkens, C M, Douwes, A C

Journal:

Archives of Disease in Childhood

Year:

1996

Language:

english

File:

PDF, 1.06 MB

english, 1996

66

Cerebral Lesions on 7 Tesla MRI in Patients with Sickle Cell Anemia

van der Land, Veronica, Zwanenburg, Jaco J.M., Fijnvandraat, Karin, Biemond, Bart J., Hendrikse, Jeroen, Mutsaerts, Henri J.M.M., Visser, Fredy, Wardlaw, Joanna M., Nederveen, Aart J., Majoie, Charles

Journal:

Cerebrovascular Diseases

Year:

2015

Language:

english

File:

PDF, 1.34 MB

english, 2015

67

Question 2 Does combined oral dexamethasone and epinephrine inhalation help infants with bronchiolitis to recover faster?

van Dellen, Q., Kreier, F., de Kruiff, C., Boluyt, N., Fijnvandraat, K.

Journal:

Archives of Disease in Childhood

Year:

2011

Language:

english

File:

PDF, 120 KB

english, 2011

68

Cardiomyocytes derived from embryonic stem cells resemble cardiomyocytes of the embryonic heart tube

Fijnvandraat, A

Journal:

Cardiovascular Research

Year:

2003

Language:

english

File:

PDF, 476 KB

english, 2003

69

Development of heart muscle-cell diversity: a help or a hindrance for phenotyping embryonic stem cell-derived cardiomyocytes

Fijnvandraat, A

Journal:

Cardiovascular Research

Year:

2003

Language:

english

File:

PDF, 364 KB

english, 2003

70

Growth and nutritional status of children with homozygous sickle cell disease

Al-Saqladi, A.-W. M., Cipolotti, R., Fijnvandraat, K., Brabin, BJ

Journal:

Annals of Tropical Paediatrics International Child Health

Year:

2008

Language:

english

File:

PDF, 169 KB

english, 2008

71

One-third of the new paediatric patients with sickle cell disease in The Netherlands are immigrants and do not benefit from neonatal screening

Peters, M., Fijnvandraat, K., van den Tweel, X. W., Garre, F. G., Giordano, P. C., van Wouwe, J. P., Pereira, R. R., Verkerk, P. H.

Journal:

Archives of Disease in Childhood

Year:

2010

Language:

english

File:

PDF, 135 KB

english, 2010

72

Joint bleeds in von Willebrand disease patients have significant impact on quality of life and joint integrity: a cross-sectional study

van Galen, K. P. M., Sanders, Y. V., Vojinovic, U., Eikenboom, J., Cnossen, M. H., Schutgens, R. E. G., van der Bom, J. G., Fijnvandraat, K., Laros-Van Gorkom, B. A. P., Meijer, K., Leebeek, F. W. G.,

Journal:

Year:

2015

Language:

english

File:

PDF, 155 KB

english, 2015

73

Immunobiology of Inhibitor Development in Hemophilia A

Fijnvandraat, Karin, Bril, Wendy S., Voorberg, Jan

Journal:

Seminars in Thrombosis and Hemostasis

Year:

2003

Language:

english

File:

PDF, 106 KB

english, 2003

74

Cerebral Blood Flow Measurement in Children With Sickle Cell Disease Using Continuous Arterial Spin Labeling at 3.0-Tesla MRI

van den Tweel, X. W., Nederveen, A. J., Majoie, C. B. L. M., van der Lee, J. H., Wagener-Schimmel, L., van Walderveen, M. A. A., The, B. T. P., Nederkoorn, P. J., Heijboer, H., Fijnvandraat, K.

Journal:

Year:

2009

Language:

english

File:

PDF, 440 KB

english, 2009

75

Emerging Issues in Diagnosis, Biology, and Inhibitor Risk in Mild Hemophilia A

Castaman, Giancarlo, Eckhardt, Corien, van Velzen, Alice, Linari, Silvia, Fijnvandraat, Karin

Journal:

Seminars in Thrombosis and Hemostasis

Year:

2016

Language:

english

File:

PDF, 106 KB

english, 2016

76

In Vivo T1 of Blood Measurements in Children with Sickle Cell Disease Improve Cerebral Blood Flow Quantification from Arterial Spin-Labeling MRI

Vaclavu, L., van der Land, V., Heijtel, D. F. R., van Osch, M. J. P., Cnossen, M. H., Majoie, C. B. L. M., Bush, A., Wood, J. C., Fijnvandraat, K. J., Mutsaerts, H. J. M. M., Nederveen, A. J.

Journal:

American Journal of Neuroradiology

Year:

2016

Language:

english

File:

PDF, 1.02 MB

english, 2016

77

Bleeding spectrum in children with moderate or severe von Willebrand disease: Relevance of pediatric-specific bleeding

Sanders, Yvonne V., Fijnvandraat, Karin, Boender, Johan, Mauser-Bunschoten, Evelien P., van der Bom, Johanna G., de Meris, Joke, Smiers, Frans J., Granzen, Bernd, Brons, Paul, Tamminga, Rienk Y.J., Cn

Journal:

American Journal of Hematology

Year:

2015

Language:

english

File:

PDF, 609 KB

english, 2015

78

Joint surgery in von Willebrand disease: a multicentre cross-sectional study

van Galen, K. P. M., Meijer, K., Vogely, H. C., Eikenboom, J., Schutgens, R. E. G., Cnossen, M. H., Fijnvandraat, K., van der Bom, J. G., Laros-van Gorkom, B. A. P., Leebeek, F. W. G., Mauser-Bunschot

Journal:

Year:

2016

Language:

english

File:

PDF, 109 KB

english, 2016

79

Perioperative treatment of hemophilia A patients: blood group O patients are at risk of bleeding complications

Hazendonk, H. C. A. M., Lock, J., Mathôt, R. A. A., Meijer, K., Peters, M., Laros-van Gorkom, B. A. P., van der Meer, F. J. M., Driessens, M. H. E., Leebeek, F. W. G., Fijnvandraat, K., Cnossen, M. H.

Journal:

Journal of Thrombosis and Haemostasis

Year:

2016

Language:

english

File:

PDF, 326 KB

english, 2016

80

Facilitating the implementation of pharmacokinetic-guided dosing of prophylaxis in haemophilia care by discrete choice experiment

Lock, J., de Bekker-Grob, E. W., Urhan, G., Peters, M., Meijer, K., Brons, P., van der Meer, F. J. M., Driessens, M. H. E., Collins, P. W., Fijnvandraat, K., Leebeek, F. W. G., Cnossen, M. H.

Journal:

Year:

2016

Language:

english

File:

PDF, 336 KB

english, 2016

81

White spots and black holes: developing a conceptual model for broadband rollout

Bouwman, Harry, Fijnvandraat, Marieke, van de Wijngaert, Lidwien

Journal:

Year:

2006

Language:

english

File:

PDF, 438 KB

english, 2006

82

CLEC4M and STXBP5 gene variations contribute to von Willebrand factor level variation in von Willebrand disease

Sanders, Y. V., van der Bom, J. G., Isaacs, A., Cnossen, M. H., de Maat, M. P. M., Laros-van Gorkom, B. A. P., Fijnvandraat, K., Meijer, K., van Duijn, C. M., Mauser-Bunschoten, E. P., Eikenboom, J.,

Journal:

Journal of Thrombosis and Haemostasis

Year:

2015

Language:

english

File:

PDF, 366 KB

english, 2015

83

Implementation of electronic patient reported outcomes in pediatric daily clinical practice: The KLIK experience.

Haverman, Lotte, van Oers, Hedy A., Limperg, Perrine F., Hijmans, Channa T., Schepers, Sasja A., Sint Nicolaas, Simone M., Verhaak, Chris M., Bouts, Antonia H. M., Fijnvandraat, Karin, Peters, Marjole

Journal:

Clinical Practice in Pediatric Psychology

Year:

2014

Language:

english

File:

PDF, 1.21 MB

english, 2014

84

Quality of life of female caregivers of children with sickle cell disease: a survey

van den Tweel, X. W., Hatzmann, J., Ensink, E., van der Lee, J. H., Peters, M., Fijnvandraat, K., Grootenhuis, M.

Journal:

Year:

2008

Language:

english

File:

PDF, 151 KB

english, 2008

85

A population pharmacokinetic model for perioperative dosing of factor VIII in hemophilia A patients

Hazendonk, H., Fijnvandraat, K., Lock, J., Driessens, M., van der Meer, F., Meijer, K., Kruip, M., Gorkom, B. L.-v., Peters, M., de Wildt, S., Leebeek, F., Cnossen, M., Mathot, R.

Journal:

Year:

2016

Language:

english

File:

PDF, 1017 KB

english, 2016

86

Daily pain in adults with sickle cell disease - a different perspective

van Tuijn, Charlotte F.J., Sins, Joep W.R., Fijnvandraat, Karin, Biemond, Bart J.

Journal:

American Journal of Hematology

Year:

2016

Language:

english

File:

PDF, 1.03 MB

english, 2016

87

Variation in baseline factor VIII concentration in a retrospective cohort of mild/moderate hemophilia A patients carrying identical F8 mutations

Loomans, J. I., van Velzen, A. S., Eckhardt, C. L., Peters, M., Mäkipernaa, A., Holmstrom, M., Brons, P. P., Dors, N., Haya, S., Voorberg, J., van der Bom, J. G., Fijnvandraat, K.

Journal:

Journal of Thrombosis and Haemostasis

Year:

2017

Language:

english

File:

PDF, 554 KB

english, 2017

88

Psychosocial care for children with haemophilia and their parents in the Netherlands

Limperg, P.F., Haverman, L., Beijlevelt, M., van der Pot, M., Zaal, G., de Boer, W.A., Fijnvandraat, K., Peters, M., Grootenhuis, M. A.

Journal:

Year:

2017

Language:

english

File:

PDF, 328 KB

english, 2017

89

Long-term impact of joint bleeds in Von Willebrand Disease: a nested case-control study

van Galen, Karin P.M., de Kleijn, Piet, Foppen, Wouter, Eikenboom, Jeroen, Meijer, Karina, Schutgens, Roger E.G., Fischer, Kathelijn, Cnossen, Marjon H., de Meris, Joke, Fijnvandraat, Karin, van der B

Journal:

Year:

2017

Language:

english

File:

PDF, 443 KB

english, 2017

90

Effect of N -acetylcysteine on pain in daily life in patients with sickle cell disease: a randomised clinical trial

Sins, Joep W. R., Fijnvandraat, Karin, Rijneveld, Anita W., Boom, Martine B., Kerkhoffs, Jean-Louis H., van Meurs, Alfred H., de Groot, Marco R., Heijboer, Harriët, Dresse, Marie-Françoise, Lê, Phu Qu

Journal:

British Journal of Haematology

Year:

2017

Language:

english

File:

PDF, 97 KB

english, 2017

91

To serve and protect: The modulatory role of von Willebrand factor on factor VIII immunogenicity

Hartholt, Robin B., van Velzen, Alice S., Peyron, Ivan, ten Brinke, Anja, Fijnvandraat, Karin, Voorberg, Jan

Journal:

Year:

2017

Language:

english

File:

PDF, 731 KB

english, 2017

92

Intracranial haemorrhage in children and adolescents with severe haemophilia A or B - the impact of prophylactic treatment

Andersson, Nadine G., Auerswald, Günter, Barnes, Chris, Carcao, Manuel, Dunn, Amy L., Fijnvandraat, Karin, Hoffmann, Marianne, Kavakli, Kaan, Kenet, Gili, Kobelt, Rainer, Kurnik, Karin, Liesner, Ri, M

Journal:

British Journal of Haematology

Year:

2017

Language:

english

File:

PDF, 135 KB

english, 2017

93

Mortality caused by intracranial bleeding in non-severe hemophilia A patients: reply

Loomans, J. I., Fijnvandraat, K.

Journal:

Journal of Thrombosis and Haemostasis

Year:

2017

Language:

english

File:

PDF, 43 KB

english, 2017

94

In silico evaluation of limited blood sampling strategies for individualized recombinant factor IX prophylaxis in hemophilia B patients

Preijers, T., Hazendonk, H. C. A. M., Fijnvandraat, K., Leebeek, F. W. G., Cnossen, M. H., Mathôt, R. A. A.

Journal:

Journal of Thrombosis and Haemostasis

Year:

2017

Language:

english

File:

PDF, 466 KB

english, 2017

95

Non-classical FCGR2C haplotype is associated with protection from red blood cell allo-immunization in sickle cell disease

Meinderts, Sanne M., Sins, Joep W.R., Fijnvandraat, Karin, Nagelkerke, Sietse Q., Geissler, Judy, Tanck, Michael W., Bruggeman, Christine, Biemond, Bart J., Rijneveld, Anita W., Kerkhoffs, Jean-Louis

Journal:

Year:

2017

Language:

english

File:

PDF, 836 KB

english, 2017

96

Intracranial 4D flow magnetic resonance imaging reveals altered haemodynamics in sickle cell disease

Václavů, Lena, Baldew, Zelonna A. V., Gevers, Sanna, Mutsaerts, Henri J. M. M., Fijnvandraat, Karin, Cnossen, Marjon H., Majoie, Charles B., Wood, John C., VanBavel, Ed, Biemond, Bart J., van Ooij, Pi

Journal:

British Journal of Haematology

Year:

2017

Language:

english

File:

PDF, 861 KB

english, 2017

97

Circulating Angiogenic Mediators in Patients with Moderate and Severe von Willebrand Disease: A Multicentre Cross-Sectional Study

Groeneveld, Dafna, Sanders, Yvonne, Adelmeijer, Jelle, Mauser-Bunschoten, Evelien, van der Bom, Johanna, Cnossen, Marjon, Fijnvandraat, Karin, Laros-van Gorkom, Britta, Meijer, Karina, Lisman, Ton, Ei

Journal:

Thrombosis and Haemostasis

Year:

2018

Language:

english

File:

PDF, 188 KB

english, 2018

98

Inhibitors in Nonsevere Hemophilia A: What Is Known and Searching for the Unknown

Abdi, Amal, Linari, Silvia, Pieri, Lisa, Voorberg, Jan, Fijnvandraat, Karin, Castaman, Giancarlo

Journal:

Seminars in Thrombosis and Hemostasis

Year:

2018

Language:

english

File:

PDF, 234 KB

english, 2018

99

Joint assessment in von Willebrand disease

van Galen, K. P. M., Timmer, M. A., de Kleijn, P., Fischer, K., Foppen, W., Schutgens, R. E. G., Eikenboom, J., Meijer, K., Cnossen, M. H., Fijnvandraat, K., van der Bom, J. G., Laros-van Gorkom, B. A

Journal:

Thrombosis and Haemostasis

Year:

2017

Language:

english

File:

PDF, 155 KB

english, 2017

100

Perioperative replacement therapy in haemophilia B: An appeal to “B” more precise

Hazendonk, H. C. A. M., Preijers, T., Liesner, R., Chowdary, P., Hart, D., Keeling, D., Driessens, M. H. E., Laros-van Gorkom, B. A. P., van der Meer, F. J. M., Meijer, K., Fijnvandraat, K., Leebeek,

Journal:

Year:

2018

Language:

english

File:

PDF, 626 KB

english, 2018