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51

Health-Related Quality of Life in Egyptian Children and Adolescents with Hemophilia A

Tantawy, Azza A. G., Mackensen, Sylvia Von, El-Laboudy, Mohammed A. M., Labib, Jonair H., Moftah, Faten, El-Telbany, Manal A. S., Mansour, Wesam A. A.

Journal:

Pediatric Hematology-Oncology

Year:

2011

Language:

english

File:

PDF, 228 KB

english, 2011

52

Cross-cultural adaptation of the HAEMO-QOL questionnaire into 28 languages

Von Mackensen, S., Gil Campos, I., Acquadro, C., Strandberg-Larsen, M., Fuller, D.S.

Journal:

Value in Health

Year:

2013

Language:

english

File:

PDF, 71 KB

english, 2013

53

Impact of sports on children with haemophilia in terms of their health status, health-related quality of life and physical performance

Von Mackensen, S., Khair, K.

Journal:

Value in Health

Year:

2013

Language:

english

File:

PDF, 92 KB

english, 2013

54

Development of an inhibitor-specific questionnaire for the assessment of health-related quality of life in haemophilia patients with inhibitors (INHIB-QoL)

Von Mackensen, S., Riva, S., Khair, K., Yee, T.T., Rocino, A., Escuriola, C., Oldenburg, J., Gringeri, A.

Journal:

Value in Health

Year:

2013

Language:

english

File:

PDF, 74 KB

english, 2013

55

Linguistic and psychometric validation of the MSSS-88 questionnaire for patients with multiple sclerosis and spasticity in Germany

Thomas Henze,Sylvia von Mackensen,Gerald Lehrieder…

Journal:

Health and Quality of Life Outcomes

Year:

2014

Language:

english

File:

PDF, 528 KB

english, 2014

56

Phenomenology of Eccentric Fixation*

von Noorden, Gunter K., Mackensen, Günter

Journal:

American Journal of Ophthalmology

Year:

1962

Language:

english

File:

PDF, 4.30 MB

english, 1962

57

Pursuit Movements of Normal and Amblyopic Eyes*

von Noorden, Gunter K., Mackensen, Gunter

Journal:

American Journal of Ophthalmology

Year:

1962

Language:

english

File:

PDF, 909 KB

english, 1962

58

Pursuit Movements of Normal and Amblyopic Eyes*

von Noorden, Gunter K., Mackensen, Günter

Journal:

American Journal of Ophthalmology

Year:

1962

Language:

english

File:

PDF, 1.01 MB

english, 1962

59

Cross-cultural adaptation and linguistic validation of age-group-specific haemophilia patient-reported outcome (PRO) instruments for patients and parents

von Mackensen, S., Campos, I. G., Acquadro, C., Strandberg-Larsen, M.

Journal:

Year:

2013

Language:

english

File:

PDF, 664 KB

english, 2013

60

Increased burden on caregivers of having a child with haemophilia complicated by inhibitors

Lindvall, Karin, von Mackensen, Sylvia, Elmståhl, Sölve, Khair, Kate, Stain, Ann Marie, Ljung, Rolf, Berntorp, Erik

Journal:

Pediatric Blood & Cancer

Year:

2014

Language:

english

File:

PDF, 134 KB

english, 2014

61

ITP-QoL Questionnaire for Children with Immune Thrombocytopenia: Italian Version validation's

Giordano, Paola, Lassandro, Giuseppe, Giona, Fiorina, Jankovic, Momcilo, Nardi, Margherita, Nobili, Bruno, Notarangelo, Lucia Dora, Russo, Giovanna, Mackensen, Sylvia von

Journal:

Pediatric Hematology-Oncology

Year:

2014

Language:

english

File:

PDF, 364 KB

english, 2014

62

Prävalenz von Wetterfühligkeit in Deutschland

P. Höppe, S. Von Mackensen, D. Nowak, E. Piel

Year:

2002

Language:

german

File:

PDF, 134 KB

german, 2002

63

Development And Validation Of The Hemophilia-Specific Burden Scale For Caregivers Of Children With Hemophilia In The Us – The Hemophilia Associated Caregiver Burden Scale (Hemocabtm)

von Mackensen, S., Wisniewski, T., Urgo, J., Boggio, L.

Journal:

Value in Health

Year:

2015

Language:

english

File:

PDF, 71 KB

english, 2015

64

Validation of A New Hemophilia-Specific Burden Scale for Caregivers of Children With Hemophilia In The Us – The Hemophilia Associated Caregiver Burden Scale (Hemocabtm)

von Mackensen, S, Wisniewski, T, Urgo, J, Boggio, L

Journal:

Value in Health

Year:

2015

Language:

english

File:

PDF, 53 KB

english, 2015

65

Linking Quality-of-Life Measures Using the International Classification of Functioning, Disability and Health and the International Classification of Functioning, Disability and Health–Children and Youth Version in Chronic Health Conditions

Krasuska, Marta, Riva, Silvia, Fava, Leonardo, von Mackensen, Sylvia, Bullinger, Monika

Journal:

American Journal of Physical Medicine & Rehabilitation

Year:

2012

Language:

english

File:

PDF, 299 KB

english, 2012

66

The impact of sport on health status, psychological well-being and physical performance of adults with haemophilia

von Mackensen, S., Harrington, C., Tuddenham, E., Littley, A., Will, A., Fareh, M., Hay, C. R. M., Khair, K.

Journal:

Year:

2016

Language:

english

File:

PDF, 398 KB

english, 2016

67

The impact of social factors on outcomes in patients with bleeding disorders

Holstein, K., von Mackensen, S., Bokemeyer, C., Langer, F.

Journal:

Year:

2016

Language:

english

File:

PDF, 379 KB

english, 2016

68

Abstracts: 6th Annual Conference of the International Society for Quality of Life Research || The Relationship Between Coping with Work-Related Stressors and Well-Being at the Workplace

S. Von MacKensen and M. Morfeld

Journal:

Quality of Life Research

Year:

1999

Language:

english

File:

PDF, 347 KB

english, 1999

69

The Improvement of Quality of Life: A Purpose of Health Care: Abstracts: 4th Annual Conference of the International Society for Quality of Life Research || Well-Being in Office Buildings: Results of Multicentre Study into the Sick Building Syndrome

S. von Mackensen, M. Bullinger and M. Morfeld

Journal:

Quality of Life Research

Year:

1997

Language:

english

File:

PDF, 297 KB

english, 1997

70

The Well-Being of Office Workers in the Context of Mobbing

S. von Mackensen

Journal:

Quality of Life Research

Year:

1997

Language:

english

File:

PDF, 212 KB

english, 1997

71

Interpreting important health-related quality of life change using the Haem-A-QoL

Wyrwich, K. W., Krishnan, S., Poon, J. L., Auguste, P., von Maltzahn, R., Yu, R., von Mackensen, S.

Journal:

Year:

2015

Language:

english

File:

PDF, 357 KB

english, 2015

72

Changes in health-related quality of life with treatment of longer-acting clotting factors: results in the A-LONG and B-LONG clinical studies

Wyrwich, K. W., Krishnan, S., Auguste, P., Poon, J.-L., von Maltzahn, R., Yu, R., Pierce, G. F., Mei, B., Mahlangu, J., von Mackensen, S.

Journal:

Year:

2016

Language:

english

File:

PDF, 166 KB

english, 2016

73

Abstracts: 10th Annual Conference of the International Society for Quality of Life Research (ISOQOL) || # 1390/Fieldtesting of the HAEMO-QOL Questionnaire for Children and Adolescents with Haemophilia in Europe

Sylvia von. Mackensen and Monika Bullinger

Journal:

Quality of Life Research

Year:

2003

Language:

english

File:

PDF, 322 KB

english, 2003

74

Abstracts: 11th Annual Conference of the International Society for Quality of Life Research (ISOQOL) || # 1567/Developing Short Forms from Full Forms for Disease Specific Mcdules in Paediatric Quality of Life Research: The Haemoqol Experience

Silke Schmidt, Sylvia von Mackensen, Holger Muehlan, Eva Pollak and Monika Bullinger

Journal:

Quality of Life Research

Year:

2004

Language:

english

File:

PDF, 286 KB

english, 2004

75

RCT - subjective physical performance and quality of life after a 6-month programmed sports therapy (PST) in patients with haemophilia

Runkel, B., Von Mackensen, S., Hilberg, T.

Journal:

Year:

2016

Language:

english

File:

PDF, 410 KB

english, 2016

76

Measurement properties of the Haem-A-QoL in haemophilia clinical trials

von Mackensen, S., Eldar-Lissai, A., Auguste, P., Krishnan, S., von Maltzahn, R., Yu, R., Wyrwich, K. W.

Journal:

Year:

2016

Language:

english

File:

PDF, 260 KB

english, 2016

77

Haemophilia patients’ unmet needs and their expectations of the new extended half-life factor concentrates

von Mackensen, S., Kalnins, W., Krucker, J., Weiss, J., Miesbach, W., Albisetti, M., Pabinger, I., Oldenburg, J.

Journal:

Year:

2017

Language:

english

File:

PDF, 311 KB

english, 2017

78

Comparison of Occlusive and Open Application in a Psoriasis Plaque Test Design, Examplarily Using Investigations of Mapracorat 0.1% Ointment versus Vehicle and Reference Drugs

Wigger-Alberti, Walter, Williams, Ragna, von Mackensen, Yi-Ling, Hoffman-Wecker, Maciej, Grossmann, Ulrike, Staedtler, Gerald, Nkulikiyinka, Richard, Shakery, Kaweh

Journal:

Skin Pharmacology and Physiology

Year:

2017

Language:

english

File:

PDF, 249 KB

english, 2017

79

249 Topical ROR inverse agonist GSK2981278 in a psoriasis plaque test

Kang, E., Wu, S., Gupta, A., von Mackensen, Y., Siemetzki, H., Wigger-Alberti, W., Yamaguchi, Y.

Journal:

The Journal of Investigative Dermatology

Year:

2017

Language:

english

File:

PDF, 234 KB

english, 2017

80

Study of physical function in adolescents with haemophilia: The SO-FIT study

Khair, K., Holland, M., Bladen, M., Griffioen, A., McLaughlin, P., von Mackensen, S.

Journal:

Year:

2017

Language:

english

File:

PDF, 570 KB

english, 2017

81

A Phase I Randomised Controlled Trial to Evaluate Safety and Clinical Effect of Topically Applied GSK2981278 Ointment in a Psoriasis Plaque Test

Kang, E. G., Wu, S., Gupta, A., von Mackensen, Y-L., Siemetzki, H., Freudenberg, J. M., Wigger-Alberti, W., Yamaguchi, Y.

Journal:

British Journal of Dermatology

Year:

2017

Language:

english

File:

PDF, 211 KB

english, 2017

82

Health-Related Quality of Life and Psychological Aspects of Adults With Hemophilia in Iran

Rambod, Masoume, Sharif, Farkhondeh, Molazem, Zahra, Khair, Kate, von Mackensen, Sylvia

Journal:

Clinical and Applied Thrombosis/Hemostasis

Year:

2018

Language:

english

File:

PDF, 402 KB

english, 2018

83

The multiple benefits of sport in haemophilia

Farrugia, A., Gringeri, A., von Mackensen, S.

Journal:

Year:

2018

Language:

english

File:

PDF, 314 KB

english, 2018

84

Health-Related Quality of Life in Children and Adolescents with Hereditary Bleeding Disorders and in Children and Adolescents with Stroke: Cross-Sectional Comparison to Siblings and Peers

Neuner, Bruno, von Mackensen, Sylvia, Holzhauer, Susanne, Funk, Stephanie, Klamroth, Robert, Kurnik, Karin, Krümpel, Anne, Halimeh, Susan, Reinke, Sarah, Frühwald, Michael, Nowak-Göttl, Ulrike

Journal:

BioMed Research International

Year:

2016

Language:

english

File:

PDF, 1.32 MB

english, 2016

85

Validation of the Haemophilia & Exercise Project-Test-Questionnaire (HEP-Test-Q)-An instrument for the assessment of subjective physical functioning in children with haemophilia

von Mackensen, S., Hilberg, T., Valentino, L. A., Kurnik, K., Khair, K.

Journal:

Year:

2018

Language:

english

File:

PDF, 494 KB

english, 2018

86

Progression of Age-Related Geographic Atrophy: Role of the Fellow Eye

Fleckenstein, Monika, Schmitz-Valckenberg, Steffen, Adrion, Christine, Visvalingam, Sivatharisini, Göbel, Arno P., Mössner, Andreas, von Strachwitz, Claudia N., Mackensen, Friederike, Pauleikhoff, Dan

Journal:

Investigative Ophthalmology & Visual Science

Year:

2011

Language:

english

File:

PDF, 810 KB

english, 2011

87

Health-related quality of life in paediatric haemophilia B patients treated with rIX-FP

von Mackensen, Sylvia, Shah, Jinesh, Seifert, Wilfried, Kenet, Gili

Journal:

Year:

2018

Language:

english

File:

PDF, 639 KB

english, 2018

88

Impact of Adopting Population Pharmacokinetics for Tailoring Prophylaxis in Haemophilia A Patients: A Historically Controlled Observational Study

Stemberger, Michaela, Kallenbach, Felix, Schmit, Elisabeth, McEneny-King, Alanna, Germini, Federico, Yeung, Cindy, Edginton, Andrea, von Mackensen, Sylvia, Kurnik, Karin, Iorio, Alfonso

Journal:

Thrombosis and Haemostasis

Year:

2019

Language:

english

File:

PDF, 414 KB

english, 2019

89

The burden of bleeds and other clinical determinants on caregivers of children with haemophilia (the BBC Study)

Khair, Kate, Klukowska, Anna, Myrin Westesson, Linda, Kavakli, Kaan, Escuriola, Carmen, Uitslager, Nanda, Santoro, Cristina, Holland, Mike, von Mackensen, Sylvia

Journal:

Year:

2019

Language:

english

File:

PDF, 859 KB

english, 2019

90

Health-related quality-of-life and treatment satisfaction of individuals with hemophilia A treated with turoctocog alfa pegol (N8-GP): a new recombinant extended half-life FVIII

Kearney, Susan, Raffini, Leslie J, Pham, Tan P, Lee, Xin Ying, von Mackensen, Sylvia, Landorph, Andrea, Takedani, Hideyuki, Oldenburg, Johannes

Journal:

Patient Preference and Adherence

Year:

2019

Language:

english

File:

PDF, 1012 KB

english, 2019

91

Quality of life and subjective physical performance in adult haemophilia patients

von Mackensen, S., Czepa, D., Herbsleb, M., Ziezio, R., Hilberg, T.

Journal:

Hämostaseologie

Year:

2008

Language:

english

File:

PDF, 98 KB

english, 2008

92

BAY 81â8973 prophylaxis and pharmacokinetics in haemophilia A: Interim results from the TAURUS study

Santoro, Cristina, Fuh, Beng, Le, Phu Quoc, Maes, Philip, Berrueco, RubÃ©n, MingotâCastellano, Eva Maria, von Mackensen, Sylvia, Solms, Alexander, Wang, Michael

Journal:

European Journal of Haematology

Year:

2020

File:

PDF, 11.98 MB

2020

93

Heavy menstrual bleeding in women with inherited bleeding disorders

Djambas Khayat, Claudia, Gouider, Emna, von Mackensen, Sylvia, Abdul Kadir, Rezan

Journal:

Year:

2020

File:

PDF, 324 KB

2020

94

Health-Related Quality of Life, Treatment Satisfaction and Adherence Outcomes of Haemophilia Patients Living in a German Rural Region

von Mackensen, Sylvia, Schleicher, Christian, Heine, Sabine, Graf, Norbert, Eichler, Hermann

Journal:

Year:

2020

File:

PDF, 1.05 MB

2020

95

A phase I, randomized, doubleâblind study to assess the safety, tolerability, and efficacy of the topical RORC2 inverse agonist PFâ06763809 in participants with mildâtoâmoderate plaque psoriasis

Berstein, G., Zhang, Y., Berger, Z., Kieras, E., Li, G., Samuel, A., Yeoh, T., Dowty, H., Beaumont, K., WiggerâAlberti, W., von Mackensen, Y., Kroencke, U., Hamscho, R., Garcet, S., Krueger, J.G., B

Journal:

Clinical and Experimental Dermatology

Year:

2020

File:

PDF, 8.06 MB

2020

96

Impact of COVID-19 pandemic on mental health of patients with inherited bleeding disorders in Germany

von Mackensen, Sylvia, Halimeh, Susan, Siebert, Manuela, Wermes, Cornelia, Hassenpflug, Wolf, Holstein, Katharina, Olivieri, Martin

Journal:

Year:

2020

File:

PDF, 552 KB

2020

97

The impact of bleeding disorders on the socioeconomic status of adult patients

Holstein, K., von Mackensen, S., Bokemeyer, C., Langer, F.

Journal:

Year:

2017

File:

PDF, 348 KB

2017