National Registries of Rare Diseases in Europe: An Overview...

National Registries of Rare Diseases in Europe: An Overview of the Current Situation and Experiences

Taruscio, Domenica, Vittozzi, Luciano, Choquet, Remy, Heimdal, Ketil, Iskrov, Georgi, Kodra, Yllka, Landais, Paul, Posada, Manuel, Stefanov, Rumen, Steinmueller, Christiane, Swinnen, Elfriede, Van Oye
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Volume:
18
Year:
2015
Language:
english
Journal:
Public Health Genomics
DOI:
10.1159/000365897
File:
PDF, 137 KB
english, 2015
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