‘You should at least ask’. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research
McCormack, Pauline, Kole, Anna, Gainotti, Sabina, Mascalzoni, Deborah, Molster, Caron, Lochmüller, Hanns, Woods, SimonLanguage:
english
Journal:
European Journal of Human Genetics
DOI:
10.1038/ejhg.2016.30
Date:
April, 2016
File:
PDF, 272 KB
english, 2016