Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease
Wood, Libby, Bassez, Guillaume, Bleyenheuft, Corinne, Campbell, Craig, Cossette, Louise, Jimenez-Moreno, Aura Cecilia, Dai, Yi, Dawkins, Hugh, Manera, Jorge Alberto Diaz, Dogan, Celine, el Sherif, RasVolume:
13
Language:
english
Journal:
Orphanet Journal of Rare Diseases
DOI:
10.1186/s13023-018-0889-0
Date:
December, 2018
File:
PDF, 1.49 MB
english, 2018