Development of a pilot rare disease registry: a focus group...

Orphanet Journal of Rare Diseases 2019 / 12 Vol. 14; Iss. 1

Development of a pilot rare disease registry: a focus group study of initial steps towards the establishment of a rare disease ecosystem in Slovenia

Stanimirovic, Dalibor, Murko, Eva, Battelino, Tadej, Groselj, Urh
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Volume:
14
Language:
english
Journal:
Orphanet Journal of Rare Diseases
DOI:
10.1186/s13023-019-1146-x
Date:
December, 2019
File:
PDF, 727 KB
english, 2019
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