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Share and protect our health data: an evidence based approach to rare disease patients’ perspectives on data sharing and data protection - quantitative survey and recommendations
Courbier, Sandra, Dimond, Rebecca, Bros-Facer, VirginieVolume:
14
Language:
english
Journal:
Orphanet Journal of Rare Diseases
DOI:
10.1186/s13023-019-1123-4
Date:
December, 2019
File:
PDF, 678 KB
english, 2019