Volume 14; Issue 11

American Journal of Bioethics

Volume 14; Issue 11

1

FDA Implementation of the Expanded Access Program in the United States

Roth-Cline, Michelle, Nelson, Robert

Journal:

American Journal of Bioethics

Year:

2014

Language:

english

File:

PDF, 81 KB

english, 2014

2

Ethical Justifications for Access to Unapproved Medical Interventions: An Argument for (Limited) Patient Obligations

Walker, Mary Jean, Rogers, Wendy A., Entwistle, Vikki

Journal:

American Journal of Bioethics

Year:

2014

Language:

english

File:

PDF, 166 KB

english, 2014

3

Protecting Posted Genes: Social Networking and the Limits of GINA

Lee, Sandra Soo-Jin, Borgelt, Emily

Journal:

American Journal of Bioethics

Year:

2014

Language:

english

File:

PDF, 264 KB

english, 2014

4

Direct-to-Consumer Genomics Companies Should Provide Guidance to Their Customers on (Not) Sharing Personal Genomic Information

Garrison, Nanibaa’ A., Non, Amy L.

Journal:

American Journal of Bioethics

Year:

2014

Language:

english

File:

PDF, 82 KB

english, 2014

5

Right Answer, Wrong Question: Special Access, Knowledge Generation, and Clinical Trial Legitimacy

Lowry, Christopher

Journal:

American Journal of Bioethics

Year:

2014

Language:

english

File:

PDF, 80 KB

english, 2014

6

Response to Open Peer Commentaries on “The Principle of Equivalence Reconsidered: Assessing the Relevance of the Principle of Equivalence in Prison Medicine”

Jotterand, Fabrice, Wangmo, Tenzin

Journal:

American Journal of Bioethics

Year:

2014

Language:

english

File:

PDF, 65 KB

english, 2014

7

Beyond Social Media: Inadvertent Acquisition of Genetic Information in Medical Certifications

Prince, Anya E. R.

Journal:

American Journal of Bioethics

Year:

2014

Language:

english

File:

PDF, 86 KB

english, 2014

8

Data Donation Could Power the Learning Health Care System, Including Special Access Programs

Wicks, P., Heywood, J. A.

Journal:

American Journal of Bioethics

Year:

2014

Language:

english

File:

PDF, 48 KB

english, 2014

9

Access to Unapproved Medical Interventions in Cases of Catastrophic Illness

Journal:

American Journal of Bioethics

Year:

2014

Language:

english

File:

PDF, 81 KB

english, 2014

10

Special Access Programs Warrant Further Critical Attention: Authors’ Response to Open Peer Commentaries on “Ethical Justifications for Access to Unapproved Medical Interventions: An Argument for (Limited) Patient Obligations”

Walker, Mary Jean, Rogers, Wendy A., Entwistle, Vikki

Journal:

American Journal of Bioethics

Year:

2014

Language:

english

File:

PDF, 71 KB

english, 2014

11

How Political Cultures Affect Governance Efforts To Protect “Posted Genes”: Insights From Germany

Lander, Jonas, Van Hoyweghen, Ine

Journal:

American Journal of Bioethics

Year:

2014

Language:

english

File:

PDF, 93 KB

english, 2014

12

Sharing Genetic Information Online: An Exploration of GINA's 2.0 Frontier

Ragoussis, Vassilis, Feze, Ida Ngueng, Joly, Yann

Journal:

American Journal of Bioethics

Year:

2014

Language:

english

File:

PDF, 83 KB

english, 2014

13

Proposal for Patient Obligations for Access to Unapproved Medical Interventions: Both Too Much and Not Enough

Chapman, Audrey

Journal:

American Journal of Bioethics

Year:

2014

Language:

english

File:

PDF, 72 KB

english, 2014

14

Compassion for Each Individual's Own Sake

Caplan, Arthur, Bateman-House, Alison

Journal:

American Journal of Bioethics

Year:

2014

Language:

english

File:

PDF, 63 KB

english, 2014

15

Policy and the Inevitability of Sharing: GINA and Social Media

Yu, Joon-Ho, Engrav, Rebecca S.

Journal:

American Journal of Bioethics

Year:

2014

Language:

english

File:

PDF, 70 KB

english, 2014

16

Special Access Programs and Clinical Research Trials—An Integration Long Overdue

Vernillo, Anthony

Journal:

American Journal of Bioethics

Year:

2014

Language:

english

File:

PDF, 69 KB

english, 2014

17

Compassion and Research in Compassionate Use

Journal:

American Journal of Bioethics

Year:

2014

Language:

english

File:

PDF, 52 KB

english, 2014

18

SAPs: A Different Perspective

Rabourn, Jess, Bedlack, Richard S.

Journal:

American Journal of Bioethics

Year:

2014

Language:

english

File:

PDF, 38 KB

english, 2014

19

GINA's Limits or Something More? The Need for Greater Protection of Employee Health-Related Information

Roberts, Jessica L.

Journal:

American Journal of Bioethics

Year:

2014

Language:

english

File:

PDF, 84 KB

english, 2014