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Volume 18; Issue 4
Main
American Journal of Bioethics
Volume 18; Issue 4
American Journal of Bioethics
Volume 18; Issue 4
1
Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research
Kraft, Stephanie A.
,
Cho, Mildred K.
,
Gillespie, Katherine
,
Halley, Meghan
,
Varsava, Nina
,
Ormond, Kelly E.
,
Luft, Harold S.
,
Wilfond, Benjamin S.
,
Soo-Jin Lee, Sandra
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 1008 KB
Your tags:
english, 2018
2
Enhance Diversity Among Researchers to Promote Participant Trust in Precision Medicine Research
Sierra-Mercado, Demetrio
,
Lázaro-Muñoz, Gabriel
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 873 KB
Your tags:
english, 2018
3
What's in a Name? The Politics of ‘Precision Medicine’
Chan, Sarah
,
Erikainen, Sonja
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 858 KB
Your tags:
english, 2018
4
What's Trust Got To Do With It? Ensuring Meaningful Community Engagement
Plunk, Andrew
,
Gehlert, Sarah
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 825 KB
Your tags:
english, 2018
5
The Role of the Health Care Provider in Building Trust Between Patients and Precision Medicine Research Programs
Persaud, Anitra
,
Bonham, Vence L.
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 812 KB
Your tags:
english, 2018
6
Trust, Precision Medicine Research, and Equitable Participation of Underserved Populations
Sabatello, Maya
,
Callier, Shawneequa
,
Garrison, Nanibaa' A.
,
Cohn, Elizabeth G.
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 874 KB
Your tags:
english, 2018
7
Perspectives on Achieving Institutional Trust in Personalized Medicine
Samuel, Gabrielle
,
Dheensa, Sandi
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 870 KB
Your tags:
english, 2018
8
Involving Pregnant Women in Research: What Should We Recommend When the Regulations Seem Ethically Problematic?
Taylor, Holly A.
,
Morales, Christian
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 823 KB
Your tags:
english, 2018
9
Ethical Guidance for Selecting Clinical Trials to Receive Limited Space in an Immunotherapy Production Facility
Jecker, Nancy S.
,
Wightman, Aaron G.
,
Rosenberg, Abby R.
,
Diekema, Douglas S.
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 899 KB
Your tags:
english, 2018
10
Prioritizing Facts and Values in Immunotherapy Trial Selection: Some Further Guidance
Milleson, Valerye
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 869 KB
Your tags:
english, 2018
11
Building a Trustworthy Precision Health Research Enterprise
Magnus, David
,
Batten, Jason N.
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 821 KB
Your tags:
english, 2018
12
Ethical Ruminations of a Rheumatologist: Autoimmunity Is an Important Consideration for Immunotherapy Trials
Kang, Jane S.
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 866 KB
Your tags:
english, 2018
13
Patients' Trust as Fundament for Research Ethics Boards
Tromp, Krista
,
van de Vathorst, Suzanne
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 880 KB
Your tags:
english, 2018
14
Inspired Translation: Synthesizing Qualitative Research and Boot Camp Translation to Achieve Meaningful Community Engagement
Kwan, Bethany M.
,
Millward, Suzanne R.
,
Himber, Meleah
,
Ressalam, Julie
,
Wald, Heidi
,
Wynia, Matthew
,
Coors, Marilyn E.
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 825 KB
Your tags:
english, 2018
15
Conflicts Between Regulations and Ethical Principles: Resolving Ambiguity in Favor of the Ethically Preferable Outcome
Shah, Seema K.
,
Porter, Kathryn
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 834 KB
Your tags:
english, 2018
16
Geometry of Trust: Why We Need to Distinguish Between Horizontal and Vertical Trust
Jongsma, Karin R.
,
Bredenoord, Annelien L.
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 880 KB
Your tags:
english, 2018
17
When to Avoid Giving Advice on the Ethical Conduct of Research
Sharp, Richard R.
,
Allyse, Megan A.
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 810 KB
Your tags:
english, 2018
18
Response to Open Peer Commentaries on “The Default Position: Optimizing Pediatric Participation in Medical Decision Making”
Olszewski, Aleksandra E.
,
Goldkind, Sara F.
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 912 KB
Your tags:
english, 2018
19
Diversity Beyond Race and Ethnicity: Enhancing Inclusion With an Expanded Definition of Diversity
Quinn, Gwendolyn P.
,
Gwede, Clement K.
,
Meade, Cathy D.
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 875 KB
Your tags:
english, 2018
20
Response to Open Peer Commentaries on “From ‘Longshot’ to ‘Fantasy’: Obligations to Pediatric Patients and Families When Last-Ditch Medical Efforts Fail”
Weiss, Elliott Mark
,
Fiester, Autumn
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 890 KB
Your tags:
english, 2018
21
Mutual Obligations in Research and Withholding Payment From Deceptive Participants
Lynch, Holly Fernandez
,
Gelinas, Luke
,
Largent, Emily A.
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 845 KB
Your tags:
english, 2018
22
Misplaced Trust: Building Research Relationships in the Age of Biorepository Networks
Goldenberg, Aaron
,
Brothers, Kyle
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 861 KB
Your tags:
english, 2018
23
Learning Is Not Enough: Earning Institutional Trustworthiness Through Knowledge Translation
Morain, Stephanie R.
,
Kass, Nancy E.
,
Faden, Ruth R.
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 899 KB
Your tags:
english, 2018
24
When Research Regulations and Ethics Conflict
Sullivan, Haley K.
,
Braverman, Derek W.
,
Wendler, David
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 865 KB
Your tags:
english, 2018
25
Including Everyone but Engaging No One? Partnership as a Prerequisite for Trustworthiness
Cheung, Alexander T. M.
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 833 KB
Your tags:
english, 2018
26
Unjust Outcomes and Unfair Process?
MacDougall, D. Robert
,
Smith, Elise M.
,
Resnik, David B.
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 846 KB
Your tags:
english, 2018
27
Best to Exclude but Pay
Danis, Marion
,
Doernberg, Sam
,
Memoli, Matthew
,
Millum, Joseph
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 811 KB
Your tags:
english, 2018
28
Grudging Trust and the Limits of Trustworthy Biorepository Curation
Meagher, Karen M.
,
Juengst, Eric T.
,
Henderson, Gail E.
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 836 KB
Your tags:
english, 2018
29
To Pay or Not to Pay? Withholding Payment From Research Participants
Rhodes, Rosamond
,
Danziger, Michael
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 814 KB
Your tags:
english, 2018
30
Review of Ronald W. Dworkin, Medical Catastrophe: Confessions of an Anesthesiologist 1
Gentry, Katherine Ruth
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 840 KB
Your tags:
english, 2018
31
On Scarcity and the Value of Clinical Trials
Gelinas, Luke
,
Lynch, Holly Fernandez
,
Bierer, Barbara E.
,
Cohen, I. Glenn
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 835 KB
Your tags:
english, 2018
32
Disease Prevalence and the Magnitude of Research Benefits
Pierson, Leah
,
Millum, Joseph
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 826 KB
Your tags:
english, 2018
33
Perverse Effects: How Insufficient Guidance to IPFs Can Undermine Both Research and Health Outcomes of Clinical Trials
Frye, John W.
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 889 KB
Your tags:
english, 2018
34
Fairness in Manufacturing Cellular Therapies
Das, Amritava
,
Saha, Krishanu
,
Ossorio, Pilar N.
Journal:
American Journal of Bioethics
Year:
2018
Language:
english
File:
PDF, 861 KB
Your tags:
english, 2018
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