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Volume 19; Issue 8
Main
American Journal of Bioethics
Volume 19; Issue 8
American Journal of Bioethics
Volume 19; Issue 8
1
The Ethics of Public and Service User Involvement in Health Research: The Need for Participatory Reflection on Everyday Ethical Issues
Abma, Tineke
,
Groot, Barbara
,
Widdershoven, Guy
Journal:
American Journal of Bioethics
Year:
2019
Language:
english
File:
PDF, 399 KB
Your tags:
english, 2019
2
Mind the Gap: The Ethics Void Created by the Rise of Citizen Science in Health and Biomedical Research
Patrick-Lake, Bray
,
Goldsack, Jennifer C.
Journal:
American Journal of Bioethics
Year:
2019
File:
PDF, 402 KB
Your tags:
2019
3
Who Watches the Step-Watchers: The Ups and Downs of Turning Anecdotal Citizen Science into Actionable Clinical Data
Sherman, Maya
,
Idan, Ziv
,
Greenbaum, Dov
Journal:
American Journal of Bioethics
Year:
2019
Language:
english
File:
PDF, 475 KB
Your tags:
english, 2019
4
Biomedical Citizen Science or Something Else? Reflections on Terms and Definitions
Guerrini, Christi J.
,
Wexler, Anna
,
Zettler, Patricia J.
,
McGuire, Amy L.
Journal:
American Journal of Bioethics
Year:
2019
Language:
english
File:
PDF, 838 KB
Your tags:
english, 2019
5
Institutional Review Board Oversight of Citizen Science Research Involving Human Subjects
Resnik, David B.
Journal:
American Journal of Bioethics
Year:
2019
Language:
english
File:
PDF, 417 KB
Your tags:
english, 2019
6
Considering Power Relations in Citizen Science
Keune, Jason David
Journal:
American Journal of Bioethics
Year:
2019
Language:
english
File:
PDF, 412 KB
Your tags:
english, 2019
7
N-of-1 Precision Medicine and Research Oversight
Crouse, Andrew
,
Nakano-Okuno, Mariko
,
Might, Matthew
,
May, Thomas
Journal:
American Journal of Bioethics
Year:
2019
Language:
english
File:
PDF, 410 KB
Your tags:
english, 2019
8
Parsing the Line Between Professional and Citizen Science
Evans, Barbara J.
Journal:
American Journal of Bioethics
Year:
2019
Language:
english
File:
PDF, 649 KB
Your tags:
english, 2019
9
Citizen Science and the Politicization of Epistemology
Ghinea, Narcyz
Journal:
American Journal of Bioethics
Year:
2019
File:
PDF, 471 KB
Your tags:
2019
10
Engaging the “Citizen” in Citizen Science: Who’s Actually Included?
Walajahi, Hina
Journal:
American Journal of Bioethics
Year:
2019
File:
PDF, 526 KB
Your tags:
2019
11
Cultural Considerations in Citizen Health Science and the Case for Community-Based Approaches
Metcalf, Victoria J.
,
Style, Rochelle L.
Journal:
American Journal of Bioethics
Year:
2019
File:
PDF, 427 KB
Your tags:
2019
12
Beyond Belmont—and Beyond Regulations
Rasmussen, Lisa M.
Journal:
American Journal of Bioethics
Year:
2019
File:
PDF, 625 KB
Your tags:
2019
13
A Neglected Ethical Issue in Citizen Science and DIY Biology
White, Lucie
Journal:
American Journal of Bioethics
Year:
2019
Language:
english
File:
PDF, 526 KB
Your tags:
english, 2019
14
Challenges of Citizen Science: Commons, Incentives, Organizations, and Regulations
Weber, Karsten
,
Pallas, Frank
,
Ulbricht, Max-R.
Journal:
American Journal of Bioethics
Year:
2019
Language:
english
File:
PDF, 838 KB
Your tags:
english, 2019
15
Should Patient Groups Have the Power to Redirect How Their Samples Are Used?
Chung, Eleanor T.
,
Berkman, Benjamin E.
Journal:
American Journal of Bioethics
Year:
2019
Language:
english
File:
PDF, 524 KB
Your tags:
english, 2019
16
The Importance of Gatekeeping in Citizen Science
Davis, Mark S.
Journal:
American Journal of Bioethics
Year:
2019
Language:
english
File:
PDF, 417 KB
Your tags:
english, 2019
17
Ethically Justified Restrictions on Citizen Science: A Perspective from Singapore
Labude, Markus
,
Xafis, Vicki
Journal:
American Journal of Bioethics
Year:
2019
Language:
english
File:
PDF, 420 KB
Your tags:
english, 2019
18
Avoiding a Tyranny of the Majority: Public Deliberation as Citizen Science, Sensitive Issues, and Vulnerable Populations
Ott, Mary A.
,
Knopf, Amelia S.
Journal:
American Journal of Bioethics
Year:
2019
Language:
english
File:
PDF, 641 KB
Your tags:
english, 2019
19
Co-Production: An Ethical Model for Mental Health Research?
Lignou, Sapfo
,
Capitao, Liliana
,
Hamer-Hunt, Julia Madeleine
,
Singh, Ilina
Journal:
American Journal of Bioethics
Year:
2019
Language:
english
File:
PDF, 419 KB
Your tags:
english, 2019
20
Citizen Science for Biomedical Research and Contributive Justice
Timmermann, Cristian
Journal:
American Journal of Bioethics
Year:
2019
Language:
english
File:
PDF, 518 KB
Your tags:
english, 2019
21
The Challenge of Demandingness in Citizen Science and Participatory Research
Jongsma, Karin
,
Friesen, Phoebe
Journal:
American Journal of Bioethics
Year:
2019
Language:
english
File:
PDF, 627 KB
Your tags:
english, 2019
22
A Neglected Ethical Issue in Citizen Science and DIY Biology
White, Lucie
Journal:
American Journal of Bioethics
Year:
2019
File:
PDF, 526 KB
Your tags:
2019
23
Avoiding a Tyranny of the Majority: Public Deliberation as Citizen Science, Sensitive Issues, and Vulnerable Populations
Ott, Mary A.
,
Knopf, Amelia S.
Journal:
American Journal of Bioethics
Year:
2019
File:
PDF, 641 KB
Your tags:
2019
24
Co-Production: An Ethical Model for Mental Health Research?
Lignou, Sapfo
,
Capitao, Liliana
,
Hamer-Hunt, Julia Madeleine
,
Singh, Ilina
Journal:
American Journal of Bioethics
Year:
2019
File:
PDF, 419 KB
Your tags:
2019
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