Volume 13; Issue S1

Orphanet Journal of Rare Diseases

Volume 13; Issue S1

1

Strategies for care quality improvement in Cystic Fibrosis

Rault, Gilles, Lombrail, Pierre

Journal:

Orphanet Journal of Rare Diseases

Year:

2018

Language:

english

File:

PDF, 247 KB

english, 2018

2

Introduction of a collaborative quality improvement program in the French cystic fibrosis network: the PHARE-M initiative

Pougheon Bertrand, Dominique, Minguet, Guy, Lombrail, Pierre, Rault, Gilles

Journal:

Orphanet Journal of Rare Diseases

Year:

2018

Language:

english

File:

PDF, 474 KB

english, 2018

3

Quality of care in cystic fibrosis: assessment protocol of the French QIP PHARE-M

Pougheon Bertrand, Dominique, Nowak, Emmanuel, Dehillotte, Clémence, Lemmonier, Lydie, Rault, Gilles

Journal:

Orphanet Journal of Rare Diseases

Year:

2018

Language:

english

File:

PDF, 697 KB

english, 2018

4

Trans-Atlantic collaboration: applying lessons learned from the US CF Foundation quality improvement initiative

Sabadosa, Kathryn A., Godfrey, Marjorie M., Marshall, Bruce C.

Journal:

Orphanet Journal of Rare Diseases

Year:

2018

Language:

english

File:

PDF, 617 KB

english, 2018

5

A quality improvement program to improve nutritional status of children with Cystic Fibrosis aged 2-12 years old over a 3 year period at CF center Roscoff, Brittany

Revert, Krista, Audran, Laurence, Pengam, Jocelyne, Lesne, Pascal, Pougheon Bertrand, Dominique

Journal:

Orphanet Journal of Rare Diseases

Year:

2018

Language:

english

File:

PDF, 2.51 MB

english, 2018

6

A quality improvement program for adolescents with cystic fibrosis: focus on psychosocial skills

Gérardin, Michele, Pesle, Anne, Pougheon-Bertrand, Dominique, Léger, Pilar, Vallet, Céline, Bihouee, Tiphaine, David, Valérie

Journal:

Orphanet Journal of Rare Diseases

Year:

2018

Language:

english

File:

PDF, 1.69 MB

english, 2018

7

A quality improvement program to reduce the time on the lung transplant waiting list at the Nantes University Hospital

Danner-Boucher, Isabelle, Loppinet, Véronique, Boxus, Aurore, Dary, Claire, Lambert, Anne Brigitte, Prieur, Marine, Vallet, Céline, Tissot, Adrien

Journal:

Orphanet Journal of Rare Diseases

Year:

2018

Language:

english

File:

PDF, 1.39 MB

english, 2018

8

Lessons from the on-site quality audit of data transmitted to the French cystic fibrosis registry

Pellen, Nadine, Guéganton, Laëtitia, Pougheon Bertrand, Dominique, Rault, Gilles

Journal:

Orphanet Journal of Rare Diseases

Year:

2018

Language:

english

File:

PDF, 810 KB

english, 2018

9

Lessons from patient and parent involvement (P&PI) in a quality improvement program in cystic fibrosis care in France

Pougheon Bertrand, Dominique, Minguet, Guy, Gagnayre, Rémi, Lombrail, Pierre

Journal:

Orphanet Journal of Rare Diseases

Year:

2018

Language:

english

File:

PDF, 867 KB

english, 2018

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