Volume 18; Issue 1

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BMC Medical Ethics
Volume 18; Issue 1

BMC Medical Ethics

Volume 18; Issue 1

1

Regulation of genomic and biobanking research in Africa: a content analysis of ethics guidelines, policies and procedures from 22 African countries

de Vries, Jantina, Munung, Syntia Nchangwi, Matimba, Alice, McCurdy, Sheryl, Ouwe Missi Oukem-Boyer, Odile, Staunton, Ciara, Yakubu, Aminu, Tindana, Paulina

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 422 KB

english, 2017

2

Clinical ethics issues in HIV care in Canada: an institutional ethnographic study

Kaposy, Chris, Greenspan, Nicole R., Marshall, Zack, Allison, Jill, Marshall, Shelley, Kitson, Cynthia

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 489 KB

english, 2017

3

Critical appraisal of advance directives given by patients with fatal acute stroke: an observational cohort study

Alonso, A., Dörr, D., Szabo, K.

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 891 KB

english, 2017

4

Beyond cultural stereotyping: views on end-of-life decision making among religious and secular persons in the USA, Germany, and Israel

Schweda, Mark, Schicktanz, Silke, Raz, Aviad, Silvers, Anita

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 423 KB

english, 2017

5

Navigating social and ethical challenges of biobanking for human microbiome research

Chuong, Kim H., Hwang, David M., Tullis, D. Elizabeth, Waters, Valerie J., Yau, Yvonne C. W., Guttman, David S., O’Doherty, Kieran C.

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 437 KB

english, 2017

6

Donation after brain circulation determination of death

Dalle Ave, Anne L., Bernat, James L.

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 400 KB

english, 2017

7

How do ethnic minority patients experience the intercultural care encounter in hospitals? A systematic review of qualitative research

Degrie, Liesbet, Gastmans, Chris, Mahieu, Lieslot, Dierckx de Casterlé, Bernadette, Denier, Yvonne

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 1.01 MB

english, 2017

8

Unconventional combinations of prospective parents: ethical challenges faced by IVF providers

Klitzman, Robert

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 1.14 MB

english, 2017

9

The intention to disclose medical errors among doctors in a referral hospital in North Malaysia

HS, Arvinder-Singh, Rashid, Abdul

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 416 KB

english, 2017

10

To change or not to change - translating and culturally adapting the paediatric version of the Moral Distress Scale-Revised (MDS-R)

af Sandeberg, Margareta, Wenemark, Marika, Bartholdson, Cecilia, Lützén, Kim, Pergert, Pernilla

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 436 KB

english, 2017

11

Presumed consent: licenses and limits inferred from the case of geriatric hip fractures

Bernstein, Joseph, LeBrun, Drake, MacCourt, Duncan, Ahn, Jaimo

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 493 KB

english, 2017

12

The elusive ideal of inclusiveness: lessons from a worldwide survey of neurologists on the ethical issues raised by whole-genome sequencing

Hurlimann, Thierry, Jaitovich Groisman, Iris, Godard, Béatrice

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 438 KB

english, 2017

13

The importance of professional values from clinical nurses’ perspective in hospitals of a medical university in Iran

Poorchangizi, Batool, Farokhzadian, Jamileh, Abbaszadeh, Abbas, Mirzaee, Moghaddameh, Borhani, Fariba

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 384 KB

english, 2017

14

Smart homes, private homes? An empirical study of technology researchers’ perceptions of ethical issues in developing smart-home health technologies

Birchley, Giles, Huxtable, Richard, Murtagh, Madeleine, ter Meulen, Ruud, Flach, Peter, Gooberman-Hill, Rachael

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 469 KB

english, 2017

15

Factors affecting willingness to share electronic health data among California consumers

Kim, Katherine K., Sankar, Pamela, Wilson, Machelle D., Haynes, Sarah C.

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 394 KB

english, 2017

16

Assessment of knowledge about biobanking among healthcare students and their willingness to donate biospecimens

Leena Merdad,Lama Aldakhil,Rawan Gadi,Mourad Assidi…

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 521 KB

english, 2017

17

How Chinese clinicians face ethical and social challenges in fecal microbiota transplantation: a questionnaire study

Ma, Yonghui, Yang, Jinqiu, Cui, Bota, Xu, Hongzhi, Xiao, Chuanxing, Zhang, Faming

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 710 KB

english, 2017

18

Dynamic Consent: a potential solution to some of the challenges of modern biomedical research

Isabelle Budin-Ljøsne,Harriet J. A. Teare,Jane Kaye,Stephan Beck…

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 715 KB

english, 2017

19

Measuring value sensitivity in medicine

Christian Ineichen,Markus Christen,Carmen Tanner

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 625 KB

english, 2017

20

The ECOUTER methodology for stakeholder engagement in translational research

Madeleine J. Murtagh,Joel T. Minion,Andrew Turner…

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 467 KB

english, 2017

21

Ethical framework for the detection, management and communication of incidental findings in imaging studies, building on an interview study of researchers’ practices and perspectives

Eline M. Bunnik,Lisa van Bodegom,Wim Pinxten,Inez D. de Beaufort…

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 493 KB

english, 2017

22

Human rights violations in organ procurement practice in China

Norbert W. Paul,Arthur Caplan,Michael E. Shapiro,Charl Els…

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 1.95 MB

english, 2017

23

Defining reasonable patient standard and preference for shared decision making among patients undergoing anaesthesia in Singapore

J.L.J. Yek,A.K.Y. Lee,J.A.D. Tan,G.Y. Lin,T. Thamotharampillai…

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 929 KB

english, 2017

24

How to introduce medical ethics at the bedside - Factors influencing the implementation of an ethical decision-making model

Barbara Meyer-Zehnder,Heidi Albisser Schleger,Sabine Tanner…

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 727 KB

english, 2017

25

“I passed the test!”Evidence of diagnostic misconception in the recruitment of population controls for an H3Africa genomic study in Cape Town, South Africa

Francis Masiye,Bongani Mayosi,Jantina de Vries

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 392 KB

english, 2017

26

Implicit bias in healthcare professionals: a systematic review

Chloë FitzGerald,Samia Hurst

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 547 KB

english, 2017

27

Principle-based structured case discussions: do they foster moral competence in medical students? - A pilot study

Orsolya Friedrich,Kay Hemmerling,Katja Kuehlmeyer…

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 599 KB

english, 2017

28

A qualitative study of participants’ views on re-consent in a longitudinal biobank

Mary Dixon-Woods,David Kocman,Liz Brewster,Janet Willars…

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 446 KB

english, 2017

29

A critique of the regulation of data science in healthcare research in the European Union

John M. M. Rumbold,Barbara K. Pierscionek

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 475 KB

english, 2017

30

Fair is fair: We must re-allocate livers for transplant

Brendan Parent,Arthur L. Caplan

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 401 KB

english, 2017

31

Core information sets for informed consent to surgical interventions: baseline information of importance to patients and clinicians

Barry G. Main,Angus G. K. McNair,Richard Huxtable,Jenny L. Donovan…

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 805 KB

english, 2017

32

Ethics of health research with prisoners in Canada

Diego S. Silva,Flora I. Matheson,James V. Lavery

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 383 KB

english, 2017

33

Staff’s normative attitudes towards coercion: the role of moral doubt and professional context—a cross-sectional survey study

Bert Molewijk,Almar Kok,Tonje Husum,Reidar Pedersen,Olaf Aasland

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 515 KB

english, 2017

34

The Picture Talk Project: Starting a Conversation with Community Leaders on Research with Remote Aboriginal Communities of Australia

E.F.M. Fitzpatrick,G. Macdonald,A.L.C. Martiniuk,H. D’Antoine…

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 1.36 MB

english, 2017

35

Self-tests for influenza: an empirical ethics investigation

Benedict Rumbold,Clare Wenham,James Wilson

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 510 KB

english, 2017

36

On classifying the field of medical ethics

Kristine Bærøe,Jonathan Ives,Martine de Vries,Jan Schildmann

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 382 KB

english, 2017

37

A qualitative study on acceptable levels of risk for pregnant women in clinical research

Indira S. E. van der Zande,Rieke van der Graaf,Martijn A. Oudijk…

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 584 KB

english, 2017

38

Written versus verbal consent: a qualitative study of stakeholder views of consent procedures used at the time of recruitment into a peripartum trial conducted in an emergency setting

J. Lawton,N. Hallowell,C. Snowdon,J. E. Norman,K. Carruthers…

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 442 KB

english, 2017

39

Are advance directives helpful for good end of life decision making: a cross sectional survey of health professionals

Eimantas Peicius,Aurelija Blazeviciene,Raimondas Kaminskas

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 381 KB

english, 2017

40

Development of a consensus operational definition of child assent for research

Alan R. Tait,Michael E. Geisser

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 410 KB

english, 2017

41

Comparative effectiveness research: what to do when experts disagree about risks

Reidar K. Lie,Francis K.L. Chan,Christine Grady,Vincent H. Ng…

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 422 KB

english, 2017

42

A 14-day limit for bioethics: the debate over human embryo research

Giulia Cavaliere

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 470 KB

english, 2017

43

Ethics review of studies during public health emergencies - the experience of the WHO ethics review committee during the Ebola virus disease epidemic

Emilie Alirol,Annette C. Kuesel,Maria Magdalena Guraiib…

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 450 KB

english, 2017

44

Familiar ethical issues amplified: how members of research ethics committees describe ethical distinctions between disaster and non-disaster research

Catherine M. Tansey,James Anderson,Renaud F. Boulanger…

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 424 KB

english, 2017

45

Balancing the local and the universal in maintaining ethical access to a genomics biobank

Heeney, Catherine, Kerr, Shona M.

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 419 KB

english, 2017

46

The strange case of Mr. H. Starting dialysis at 90 years of age: clinical choices impact on ethical decisions

Piccoli, Giorgina Barbara, Sofronie, Andreea Corina, Coindre, Jean-Philippe

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 363 KB

english, 2017

47

The emergence of ethical issues in the provision of online sexual health outreach for gay, bisexual, two-spirit and other men who have sex with men: perspectives of online outreach workers

Fantus, Sophia, Souleymanov, Rusty, Lachowsky, Nathan J., Brennan, David J.

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 430 KB

english, 2017

48

Ethical aspects of brain computer interfaces: a scoping review

Burwell, Sasha, Sample, Matthew, Racine, Eric

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 642 KB

english, 2017

49

Must we remain blind to undergraduate medical ethics education in Africa? A cross-sectional study of Nigerian medical students

Okoye, Onochie, Nwachukwu, Daniel, Maduka-Okafor, Ferdinand C.

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 388 KB

english, 2017

50

Erratum to: Ethics review of studies during public health emergencies - the experience of the WHO ethics review committee during the Ebola virus disease epidemic

Alirol, Emilie, Kuesel, Annette C., Guraiib, Maria Magdalena, de la Fuente-Núñez, Vânia, Saxena, Abha, Gomes, Melba F.

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 213 KB

english, 2017

51

The Liverpool Care Pathway: discarded in cancer patients but good enough for dying nursing home patients? A systematic review

Husebø, Bettina S., Flo, Elisabeth, Engedal, Knut

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 962 KB

english, 2017

52

Pre- and post-testing counseling considerations for the provision of expanded carrier screening: exploration of European geneticists’ views

Janssens, Sandra, Chokoshvili, Davit, Vears, Danya F., De Paepe, Anne, Borry, Pascal

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 435 KB

english, 2017

53

Healthcare professionals’ and patients’ perspectives on consent to clinical genetic testing: moving towards a more relational approach

Samuel, Gabrielle Natalie, Dheensa, Sandi, Farsides, Bobbie, Fenwick, Angela, Lucassen, Anneke

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 460 KB

english, 2017

54

Does growing up with a physician influence the ethics of medical students’ relationships with the pharmaceutical industry? The cases of the US and Poland

Makowska, Marta

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 379 KB

english, 2017

55

Eliciting meta consent for future secondary research use of health data using a smartphone application - a proof of concept study in the Danish population

Ploug, Thomas, Holm, Søren

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 1.34 MB

english, 2017

56

Ethical issues of informed consent in malaria research proposals submitted to a research ethics committee in Thailand: a retrospective document review

Adams, Pornpimon, Prakobtham, Sukanya, Limpattaracharoen, Chanthima, Suebtrakul, Sumeth, Vutikes, Pitchapa, Khusmith, Srisin, Wilairatana, Polrat, Adams, Paul, Kaewkungwal, Jaranit

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 539 KB

english, 2017

57

Erratum to: The Liverpool Care Pathway: discarded in cancer patients but good enough for dying nursing home patients? A systematic review

Husebo, Bettina S., Flo, Elisabeth, Engedal, Knut

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 212 KB

english, 2017

58

Informed consent and registry-based research - the case of the Danish circumcision registry

Ploug, Thomas, Holm, Søren

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 437 KB

english, 2017

59

What is a good health check? An interview study of health check providers’ views and practices

Stol, Yrrah H., Asscher, Eva C. A., Schermer, Maartje H. N.

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 480 KB

english, 2017

60

Descriptive study of association between quality of care and empathy and burnout in primary care

Yuguero, Oriol, Marsal, Josep Ramon, Buti, Miquel, Esquerda, Montserrat, Soler-González, Jorge

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 644 KB

english, 2017

61

Limits to human enhancement: nature, disease, therapy or betterment?

Hofmann, Bjørn

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 500 KB

english, 2017

62

Collaborative partnership and the social value of clinical research: a qualitative secondary analysis

Nurmi, Sanna-Maria, Halkoaho, Arja, Kangasniemi, Mari, Pietilä, Anna-Maija

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 991 KB

english, 2017

63

This moral coil: a cross-sectional survey of Canadian medical student attitudes toward medical assistance in dying

Bator, Eli Xavier, Philpott, Bethany, Costa, Andrew Paul

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 364 KB

english, 2017

64

The no correlation argument: can the morality of conscientious objection be empirically supported? the Italian case

Bo, Marco, Zotti, Carla Maria, Charrier, Lorena

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 358 KB

english, 2017

65

Gender and age disparity in the initiation of life-supporting treatments: a population-based cohort study

Ting, Peng-Sheng, Chen, Likwang, Yang, Wei-Chih, Huang, Tien-Shang, Wu, Chau-Chung, Chen, Yen-Yuan

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 669 KB

english, 2017

66

Biobanking in Israel 2016–17; expressed perceptions versus real life enrollment

Koren, Gideon, Beller, Daniella, Laifenfeld, Daphna, Grossman, Iris, Shalev, Varda

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 423 KB

english, 2017

67

Measuring inconsistency in research ethics committee review

Trace, Samantha, Kolstoe, Simon Erik

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 624 KB

english, 2017

68

Ethical considerations in forensic genetics research on tissue samples collected post-mortem in Cape Town, South Africa

Heathfield, Laura J., Maistry, Sairita, Martin, Lorna J., Ramesar, Raj, de Vries, Jantina

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 380 KB

english, 2017

69

Roles and responsibilities of clinical ethics committees in priority setting

Magelssen, Morten, Miljeteig, Ingrid, Pedersen, Reidar, Førde, Reidun

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 372 KB

english, 2017

70

Informed consent for clinical treatment in low-income setting: evaluating the relationship between satisfying consent and extent of recall of consent information

Nnabugwu, Ikenna I., Ugwumba, Fredrick O., Udeh, Emeka I., Anyimba, Solomon K., Ozoemena, Oyiogu F.

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 500 KB

english, 2017

71

Development and pilot testing of an informed consent video for patients with limb trauma prior to debridement surgery using a modified Delphi technique

Lin, Yen-Ko, Chen, Chao-Wen, Lee, Wei-Che, Lin, Tsung-Ying, Kuo, Liang-Chi, Lin, Chia-Ju, Shi, Leiyu, Tien, Yin-Chun, Cheng, Yuan-Chia

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 364 KB

english, 2017

72

Patient-targeted Googling and social media: a cross-sectional study of senior medical students

Chester, Aaron N., Walthert, Susan E., Gallagher, Stephen J., Anderson, Lynley C., Stitely, Michael L.

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 376 KB

english, 2017

73

Decision-making on therapeutic futility in Mexican adolescents with cancer: a qualitative study

Cicero-Oneto, Carlo Egysto, Valdez-Martinez, Edith, Bedolla, Miguel

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 456 KB

english, 2017

74

Participatory improvement of a template for informed consent documents in biobank research - study results and methodological reflections

Bossert, Sabine, Kahrass, Hannes, Heinemeyer, Ulrike, Prokein, Jana, Strech, Daniel

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 803 KB

english, 2017

75

Attitudes towards assisted suicide and euthanasia among care-dependent older adults (50+) in Austria: the role of socio-demographics, religiosity, physical illness, psychological distress, and social isolation

Stolz, Erwin, Mayerl, Hannes, Gasser-Steiner, Peter, Freidl, Wolfgang

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 478 KB

english, 2017

76

Ethical challenges experienced by UK military medical personnel deployed to Sierra Leone (operation GRITROCK) during the 2014–2015 Ebola outbreak: a qualitative study

Draper, Heather, Jenkins, Simon

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 479 KB

english, 2017

77

Transplant eligibility for patients with affective and psychotic disorders: a review of practices and a call for justice

Cahn-Fuller, Katherine L., Parent, Brendan

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 337 KB

english, 2017

78

Experiences of community members and researchers on community engagement in an Ecohealth project in South Africa and Zimbabwe

Musesengwa, Rosemary, Chimbari, Moses J.

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 694 KB

english, 2017

79

The ethics of caring for hospital-dependent patients

Sung, Calvin, Herbst, Jennifer L.

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 381 KB

english, 2017

80

The use of empirical research in bioethics: a survey of researchers in twelve European countries

Wangmo, Tenzin, Provoost, Veerle

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 452 KB

english, 2017