Volume 4; Issue 1

Research Involvement and Engagement

Volume 4; Issue 1

1

Advancing patient engagement: youth and family participation in health research communities of practice

Woodgate, Roberta L., Zurba, Melanie, Tennent, Pauline

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 382 KB

english, 2018

2

Enhancing the incorporation of the patient’s voice in drug development and evaluation

Chalasani, Meghana, Vaidya, Pujita, Mullin, Theresa

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 483 KB

english, 2018

3

A method for co-creation of an evidence-based patient workbook to address alcohol use when quitting smoking in primary care: a case study

Minian, Nadia, Noormohamed, Aliya, Zawertailo, Laurie, Baliunas, Dolly, Giesbrecht, Norman, Le Foll, Bernard, Rehm, Jürgen, Samokhvalov, Andriy, Selby, Peter L.

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 1.10 MB

english, 2018

4

What does patient engagement mean for Canadian National Transplant Research Program Researchers?

Allard, Julie, Ballesteros, Fabián, Anthony, Samantha J., Dumez, Vincent, Hartell, David, Knoll, Greg, Wright, Linda, Fortin, Marie-Chantal

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 442 KB

english, 2018

5

Taking patient and public involvement online: qualitative evaluation of an online forum for palliative care and rehabilitation research

Brighton, Lisa Jane, Pask, Sophie, Benalia, Hamid, Bailey, Sylvia, Sumerfield, Marion, Witt, Jana, de Wolf-Linder, Susanne, Etkind, Simon Noah, Murtagh, Fliss E. M., Koffman, Jonathan, Evans, Catherin

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 1.30 MB

english, 2018

6

Tailoring and field-testing the use of a knowledge translation peer support shared decision making strategy with First Nations, Inuit and Métis people making decisions about their cancer care: a study protocol

Jull, Janet, Mazereeuw, Maegan, Sheppard, Amanada, Kewayosh, Alethea, Steiner, Richard, Graham, Ian D.

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 996 KB

english, 2018

7

Patient and public involvement in reducing health and care research waste

Minogue, Virginia, Cooke, Mary, Donskoy, Anne-Laure, Vicary, Penny, Wells, Bill

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 946 KB

english, 2018

8

Patient led PROMs must take centre stage in cancer research

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 449 KB

english, 2018

9

Correction to: Abstracts from the NIHR INVOLVE Conference 2017

Mathie, Elspeth, Wythe, Helena, Munday, Diane, Millac, Paul, Rhodes, Graham, Roberts, Nick, Simpson, Jean, Barden, Nat, Vicary, Penny, Wellings, Amander, Poland, Fiona, Jones, Julia

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 313 KB

english, 2018

10

Defining and evaluating novel procedures for involving patients in Core Outcome Set research: creating a meaningful long list of candidate outcome domains

Smith, Harriet, Horobin, Adele, Fackrell, Kathryn, Colley, Veronica, Thacker, Brian, Hall, Deborah A.

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 675 KB

english, 2018

11

Service user reflections on the impact of involvement in research

Gordon, Jim, Franklin, Sue, Eltringham, Sabrina A.

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 352 KB

english, 2018

12

Finding and engaging patients and the public to work collaboratively on an acute infection microbiology research public panel

Grier, Sally, Evans, David, Gibson, Andy, Chin, Teh Li, Stoddart, Margaret, Kok, Michele, Campbell, Richard, Kenny, Val, MacGowan, Alasdair

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 712 KB

english, 2018

13

Advancing Care for Family Caregivers of persons with dementia through caregiver and community partnerships

White, Carole L., Overbaugh, Kristen J., Pickering, Carolyn E. Z., Piernik-Yoder, Bridgett, James, Debbie, Patel, Darpan I., Puga, Frank, Ford, Lark, Cleveland, James

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 368 KB

english, 2018

14

Establishing research priorities relating to the long-term impact of TIA and minor stroke through stakeholder-centred consensus

Turner, Grace M., Backman, Ruth, McMullan, Christel, Mathers, Jonathan, Marshall, Tom, Calvert, Melanie

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 389 KB

english, 2018

15

Using qualitative research perspectives to inform patient engagement in research

Phoenix, Michelle, Nguyen, Tram, Gentles, Stephen J., VanderKaay, Sandra, Cross, Andrea, Nguyen, Linda

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 534 KB

english, 2018

16

Reporting and appraising the context, process and impact of PPI on contributors, researchers and the trial during a randomised controlled trial - the 3D study

Mann, Cindy, Chilcott, Simon, Plumb, Katrina, Brooks, Edmund, Man, Mei-See

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 441 KB

english, 2018

17

The prevalence of patient engagement in published trials: a systematic review

Fergusson, Dean, Monfaredi, Zarah, Pussegoda, Kusala, Garritty, Chantelle, Lyddiatt, Anne, Shea, Beverley, Duffett, Lisa, Ghannad, Mona, Montroy, Joshua, Murad, M. Hassan, Pratt, Misty, Rader, Tamara,

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 978 KB

english, 2018

18

Sharpening the focus: differentiating between focus groups for patient engagement vs. qualitative research

Doria, Nicole, Condran, Brian, Boulos, Leah, Curtis Maillet, Donna G., Dowling, Laura, Levy, Adrian

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 764 KB

english, 2018

19

The extent, quality and impact of patient and public involvement in primary care research: a mixed methods study

Blackburn, Steven, McLachlan, Sarah, Jowett, Sue, Kinghorn, Philip, Gill, Paramjit, Higginbottom, Adele, Rhodes, Carol, Stevenson, Fiona, Jinks, Clare

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 873 KB

english, 2018

20

Using patient and public involvement to improve the research design and funding application for a project aimed at fostering a more collaborative approach to the NHS health check: the CaVIAR project (better Care Via Improved Access to Records)

McMillan, Brian, Fox, Sarah, Lyons, Moira, Bourke, Suzy, Mistry, Manoj, Ruddock, Angela, Brown, Benjamin, Tang, Mei Yee, Van Marwijk, Harm

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 409 KB

english, 2018

21

Moving patient-oriented research forward: thoughts from the next generation of knowledge translation researchers

Bishop, Andrea C., Elliott, Meghan J., Cassidy, Christine

Journal:

Research Involvement and Engagement

Year:

2018

File:

PDF, 822 KB

2018

22

Inverting the patient involvement paradigm: defining patient led research

Mader, Laura B., Harris, Tess, Kläger, Sabine, Wilkinson, Ian B., Hiemstra, Thomas F.

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 1.40 MB

english, 2018

23

Patient involvement in the development of a psychosocial cancer rehabilitation intervention: evaluation of a shared working group with patients and researchers

Nissen, Eva Rames, Bregnballe, Vibeke, Mehlsen, Mimi Yung, Muldbjerg, Anne Kathrine Østerby, O’Connor, Maja, Lomborg, Kirsten Elisabeth

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 771 KB

english, 2018

24

Patient advocate involvement in the design and conduct of breast cancer clinical trials requiring the collection of multiple biopsies

Batten, Leona M., Bhattacharya, Indrani Subarna, Moretti, Laura, Haviland, Joanne S., Emson, Marie A., Miller, Sarah E., Jefford, Monica, MacKenzie, Mairead, Wilcox, Maggie, Hyslop, Marie, Todd, Rache

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 538 KB

english, 2018

25

Taking patient reported outcomes centre stage in cancer research – why has it taken so long?

Selby, Peter, Velikova, Galina

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 518 KB

english, 2018

26

Moving patient-oriented research forward: thoughts from the next generation of knowledge translation researchers

Bishop, Andrea C., Elliott, Meghan J., Cassidy, Christine

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 822 KB

english, 2018

27

User involvement in a Danish project on the empowerment of cancer patients – experiences and early recommendations for further practice

Jørgensen, Clara R., Eskildsen, Nanna B., Johnsen, Anna T.

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 649 KB

english, 2018

28

Models and frameworks of patient engagement in health services research: a scoping review protocol

Chudyk, Anna Maria, Waldman, Celeste, Horrill, Tara, Demczuk, Lisa, Shimmin, Carolyn, Stoddard, Roger, Hickes, Serena, Schultz, Annette S. H.

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 945 KB

english, 2018

29

Developing the infrastructure for patient review in academic journals

Staniszewska, Sophie, Stephens, Richard, Flemyng, Ella

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 494 KB

english, 2018

30

Female genital mutilation in the UK- where are we, where do we go next? Involving communities in setting the research agenda

Dixon, S., Agha, K., Ali, F., El-Hindi, L., Kelly, B., Locock, L., Otoo-Oyortey, N., Penny, S., Plugge, E., Hinton, L.

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 407 KB

english, 2018

31

People with lived experience (PWLE) of depression: describing and reflecting on an explicit patient engagement process within depression research priority setting in Alberta, Canada

Breault, Lorraine J., Rittenbach, Katherine, Hartle, Kelly, Babins-Wagner, Robbie, de Beaudrap, Catherine, Jasaui, Yamile, Ardell, Emily, Purdon, Scot E., Michael, Ashton, Sullivan, Ginger, Unger, Aak

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 958 KB

english, 2018

32

Meet the researchers: an alternative method of engaging patients with research in mesothelioma

Hill, Kate, Portman, Mags, Tabi, Zsuzsanna

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 860 KB

english, 2018

33

Development of a standard form for assessing research grant applications from the perspective of patients

de Wit, Maarten, Teunissen, Truus, van Houtum, Lieke, Weide, Margriet

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 697 KB

english, 2018

34

Coproduction for feasibility and pilot randomised controlled trials: learning outcomes for community partners, service users and the research team

McConnell, Tracey, Best, Paul, Davidson, Gavin, McEneaney, Tom, Cantrell, Cherry, Tully, Mark

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 978 KB

english, 2018

35

Reflections and experiences of a co-researcher involved in a renal research study

Marks, Sue, Mathie, Elspeth, Smiddy, Jane, Jones, Julia, da Silva-Gane, Maria

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 610 KB

english, 2018

36

How to engage patients in research and quality improvement in community-based primary care settings: protocol for a participatory action research pilot study

Haesebaert, Julie, Samson, Isabelle, Lee-Gosselin, Hélène, Guay-Bélanger, Sabrina, Proteau, Jean-François, Drouin, Guy, Guimont, Chantal, Vigneault, Luc, Poirier, Annie, Sanon, Priscille-Nice, Roch, G

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 802 KB

english, 2018

37

Overcoming barriers to the involvement of deafblind people in conversations about research: recommendations from individuals with Usher syndrome

Skilton, Andrew, Boswell, Emma, Prince, Kevin, Francome-Wood, Priya, Moosajee, Mariya

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 772 KB

english, 2018

38

Engaging knowledge users in development of the CONSORT-Equity 2017 reporting guideline: a qualitative study using in-depth interviews

Jull, Janet, Petticrew, Mark, Kristjansson, Elizabeth, Yoganathan, Manosila, Petkovic, Jennifer, Tugwell, Peter, Welch, Vivian

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 928 KB

english, 2018

39

Early career researchers’ perspectives and roles in patient-oriented research

Rouleau, Geneviève, Bélisle-Pipon, Jean-Christophe, Birko, Stanislav, Karazivan, Philippe, Fernandez, Nicolas, Bilodeau, Karine, Chao, Yi-Sheng, de Pokomandy, Alexandra, Foley, Véronique, Gagnon, Brun

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 1.49 MB

english, 2018

40

Patient and public involvement mobile workshops – convenient involvement for the un-usual suspects

Eccles, Abi, Bryce, Carol, Turk, Amadea, Atherton, Helen

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 1.59 MB

english, 2018

41

Stakeholder involvement in health research priority setting in low income countries: the case of Zambia

Kapiriri, Lydia

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 400 KB

english, 2018

42

Diversifying audiences and producers of public involvement in scientific research: the AudioLab

Starling, Bella, Tanswell, Jemma

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 1.47 MB

english, 2018

43

A protocol to evaluate the impact of involvement of older people with dementia and age-related hearing and/or vision impairment in a multi-site European research study

Miah, Jahanara, Dawes, Piers, Leroi, Iracema, Parsons, Suzanne, Starling, Bella

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 1.31 MB

english, 2018

44

Opportunities and challenges in public and community engagement: the connected for cognitive health in later life (CHILL) project

Lee, Caroline, Mellor, Tom, Dilworth-Anderson, Peggye, Young, Tiffany, Brayne, Carol, Lafortune, Louise

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 1.45 MB

english, 2018

45

Using qualitative Health Research methods to improve patient and public involvement and engagement in research

Rolfe, Danielle E., Ramsden, Vivian R., Banner, Davina, Graham, Ian D.

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 593 KB

english, 2018

46

Regional working in the East of England: using the UK National Standards for Public Involvement

Mathie, Elspeth, Wythe, Helena, Munday, Diane, Rhodes, Graham, Vicary, Penny, Millac, Paul, Jones, Julia

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 2.21 MB

english, 2018

47

Fostering the conduct of ethical and equitable research practices: the imperative for integrated knowledge translation in research conducted by and with indigenous community members

Jull, Janet, Morton-Ninomiya, Melody, Compton, Irene, Picard, Annie

Journal:

Research Involvement and Engagement

Year:

2018

Language:

english

File:

PDF, 601 KB

english, 2018

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