Volume 10; Issue Supplement

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Haemophilia
Volume 10; Issue Supplement

Haemophilia

Volume 10; Issue Supplement

1

Introduction

Journal:

Year:

2004

Language:

english

File:

PDF, 24 KB

english, 2004

2

Outcome measures in haemophilia: more than just factor levels

R. L. Bohn, W. Schramm, M. Bullinger, M. Van Den Berg, V. Blanchette

Journal:

Year:

2004

Language:

english

File:

PDF, 163 KB

english, 2004

3

Quality of life assessment in haemophilia

Monika Bullinger, Sylvia Von Mackensen

Journal:

Year:

2004

Language:

english

File:

PDF, 79 KB

english, 2004

4

Development and testing of an instrument to assess the Quality of Life of Children with Haemophilia in Europe (Haemo-QoL)

S. Von Mackensen, M. Bullinger, Haemo-QoL Group

Journal:

Year:

2004

Language:

english

File:

PDF, 83 KB

english, 2004

5

Health status and health-related quality of life of children with haemophilia from six West European countries

A. Gringeri, S. Von Mackensen, G. Auerswald, M. Bullinger, R. Perez Garrido, E. Kellermann, K. Khair, H. Lenk, M. Vicariot, A. Villar, C. Wermes, For the Haemo-QoL Study

Journal:

Year:

2004

Language:

english

File:

PDF, 88 KB

english, 2004

6

Development of a health-related quality of life measure for boys with haemophilia: the Canadian Haemophilia Outcomes – Kids Life Assessment Tool (CHO-KLAT)

N. L. Young, C. S. Bradley, V. Blanchette, C. D. Wakefield, D. Barnard, J. K. M. Wu, P. J. McCusker

Journal:

Year:

2004

Language:

english

File:

PDF, 114 KB

english, 2004

7

Economic evaluation: what are we looking for and how do we get there?

K. Steen Carlsson, S. Höjgård, S. Lethagen, E. Berntorp, B. Lindgren

Journal:

Year:

2004

Language:

english

File:

PDF, 63 KB

english, 2004

8

Cost–utility analysis in evaluating prophylaxis in haemophilia

M. Carcao, W. J. Ungar, B. M. Feldman

Journal:

Year:

2004

Language:

english

File:

PDF, 83 KB

english, 2004

9

Setting research priorities to improve cost-effectiveness estimations of primary prophylaxis with clotting factor for people with severe haemophilia

A. H. Miners, C. A. Lee

Journal:

Year:

2004

Language:

english

File:

PDF, 59 KB

english, 2004

10

Utilization of care in haemophilia: a resource-based method for cost analysis from the Haemophilia Utilization Group Study (HUGS)

D. R. Globe, R. G. Curtis, M. A. Koerper, For the HUGS Steering Committee

Journal:

Year:

2004

Language:

english

File:

PDF, 80 KB

english, 2004

11

Surgery in haemophilic patients with inhibitors

E. C. Rodriguez-Merchan

Journal:

Year:

2004

Language:

english

File:

PDF, 30 KB

english, 2004

12

FEIBA®: mode of action

P. L. Turecek, K. Váradi, H. Gritsch, H. P. Schwarz

Journal:

Year:

2004

Language:

english

File:

PDF, 215 KB

english, 2004

13

FEIBA® safety profile in multiple modes of clinical and home-therapy application

H. Luu, B. Ewenstein

Journal:

Year:

2004

Language:

english

File:

PDF, 160 KB

english, 2004

14

Thrombin generation assay and other universal tests for monitoring haemophilia therapy

K. Váradi, P. L. Turecek, H. P. Schwarz

Journal:

Year:

2004

Language:

english

File:

PDF, 113 KB

english, 2004

15

Literature review of surgery management in inhibitor patients

E. C. Rodriguez-Merchan, A. Rocino

Journal:

Year:

2004

Language:

english

File:

PDF, 82 KB

english, 2004

16

Surgery in haemophilic patients with inhibitor: 20 years of experience

M. Quintana-Molina, F. Martínez-Bahamonde, E. González-García, J. Romero-Garrido, A. Villar-Camacho, V. Jiménez-Yuste, I. Fernández-Bello, F. Hernández-Navarro

Journal:

Year:

2004

Language:

english

File:

PDF, 97 KB

english, 2004

17

Activated prothrombin complex concentrate (FEIBA®) treatment during surgery in patients with inhibitors to FVIII/IX: the updated Norwegian experience

G. E. Tjønnfjord

Journal:

Year:

2004

Language:

english

File:

PDF, 56 KB

english, 2004

18

Cases of surgery in high-responder haemophilia patients

J. Goudemand, G. Tagariello, F. Lopaciuk

Journal:

Year:

2004

Language:

english

File:

PDF, 54 KB

english, 2004

19

01 — Carrier and prenatal diagnosis

Journal:

Year:

2004

Language:

english

File:

PDF, 85 KB

english, 2004

20

02 — Clotting factor concentrates

Journal:

Year:

2004

Language:

english

File:

PDF, 157 KB

english, 2004

21

03 — Coagulation laboratories/tests

Journal:

Year:

2004

Language:

english

File:

PDF, 130 KB

english, 2004

22

04 — Databases and registries

Journal:

Year:

2004

Language:

english

File:

PDF, 92 KB

english, 2004

23

05 — Dental

Journal:

Year:

2004

Language:

english

File:

PDF, 63 KB

english, 2004

24

06 — Economic issues

Journal:

Year:

2004

Language:

english

File:

PDF, 100 KB

english, 2004

25

07 — Education and career development

Journal:

Year:

2004

Language:

english

File:

PDF, 53 KB

english, 2004

26

08 — Gene therapy

Journal:

Year:

2004

Language:

english

File:

PDF, 53 KB

english, 2004

27

10 — Hepatitis

Journal:

Year:

2004

Language:

english

File:

PDF, 98 KB

english, 2004

28

11 — Infectious complications

Journal:

Year:

2004

Language:

english

File:

PDF, 53 KB

english, 2004

29

13 — Legal and ethical issues

Journal:

Year:

2004

Language:

english

File:

PDF, 34 KB

english, 2004

30

09 — Hemophilia centers, programs and organizations

Journal:

Year:

2004

Language:

english

File:

PDF, 139 KB

english, 2004

31

15 — Molecular genetics of bleeding disorders

Journal:

Year:

2004

Language:

english

File:

PDF, 115 KB

english, 2004

32

12 — Inhibitors

Journal:

Year:

2004

Language:

english

File:

PDF, 221 KB

english, 2004

33

14 — Manifestations

Journal:

Year:

2004

Language:

english

File:

PDF, 97 KB

english, 2004

34

20 — Pediatric issues

Journal:

Year:

2004

Language:

english

File:

PDF, 74 KB

english, 2004

35

22 — Prophylaxis

Journal:

Year:

2004

Language:

english

File:

PDF, 78 KB

english, 2004

36

The target joint

K. Mulder, A. Llinás

Journal:

Year:

2004

Language:

english

File:

PDF, 60 KB

english, 2004

37

Functional recovery after bleeding episodes in haemophilia

P. De Kleijn, M. Gilbert, G. Roosendaal, P. M. Poonnose, P. M. Narayan, N. Tahir

Journal:

Year:

2004

Language:

english

File:

PDF, 66 KB

english, 2004

38

Physical therapy and imaging outcome measures in a haemophilia population treated with factor prophylaxis: current status and future directions

M. J. Manco-Johnson, H. Pettersson, P. Petrini, P. S. Babyn, B-M. Bergstrom, C.-S. Bradley, A. S. Doria, B. M. Feldman, S. Funk, P. Hilliard, R. Kilcoyne, B. Lundin, R. Nuss, G. Rivard, M. A. G. C. Sc

Journal:

Year:

2004

Language:

english

File:

PDF, 68 KB

english, 2004

39

von Willebrand disease: laboratory aspects of diagnosis and treatment

E. J. Favaloro, D. Lillicrap, M. A. Lazzari, M. Cattaneo, C. Mazurier, A. Woods, S. Meschengieser, A. Blanco, A. C. Kempfer, A. Hubbard, A. Chang

Journal:

Year:

2004

Language:

english

File:

PDF, 60 KB

english, 2004

40

Hepatitis C in haemophilia: lights and shadows

M. G. Rumi, F. De Filippi, E. Santagostino, M. Colombo

Journal:

Year:

2004

Language:

english

File:

PDF, 58 KB

english, 2004

41

WFH: back to the future

Journal:

Year:

2004

Language:

english

File:

PDF, 79 KB

english, 2004

42

Variant Creutzfeldt–Jakob disease: risk of transmission by blood and blood products

J. W. Ironside, M. W. Head

Journal:

Year:

2004

Language:

english

File:

PDF, 150 KB

english, 2004

43

Haemophilic factors produced by transgenic livestock: abundance that can enable alternative therapies worldwide

K. E. Van Cott, P. E. Monahan, T. C. Nichols, W. H. Velander

Journal:

Year:

2004

Language:

english

File:

PDF, 262 KB

english, 2004

44

Preclinical and clinical gene therapy for haemophilia

M. K. L. Chuah, D. Collen, T. Vandendriessche

Journal:

Year:

2004

Language:

english

File:

PDF, 74 KB

english, 2004

45

Monitoring haemophilia severity and treatment: new or old laboratory tests?

T. W. Barrowcliffe

Journal:

Year:

2004

Language:

english

File:

PDF, 157 KB

english, 2004

46

Haemophilia in the developing world: successes, frustrations and opportunities

M. Tezanos Pinto, Z. Ortiz

Journal:

Year:

2004

Language:

english

File:

PDF, 101 KB

english, 2004

47

Towards the goal of prophylaxis: experience and treatment strategies from Sweden, France and Hungary

P. Petrini, H. Chambost, L. Nemes

Journal:

Year:

2004

Language:

english

File:

PDF, 46 KB

english, 2004

48

Essential issues of laboratory investigation for patients with haemophilia and bleeding disorders

A. Chuansumrit, A. McCraw, E. F. Preston

Journal:

Year:

2004

Language:

english

File:

PDF, 53 KB

english, 2004

49

How to evaluate phenotype–genotype relationship in rare coagulation haemorrhagic disorders: examples from FVII deficiency

F. Bernardi, G. Marchetti, A. Dolce, G. Mariani

Journal:

Year:

2004

Language:

english

File:

PDF, 157 KB

english, 2004

50

Clinical picture and management of congenital factor VII deficiency

G. Mariani, A. Dolce, G. Marchetti, F. Bernardi

Journal:

Year:

2004

Language:

english

File:

PDF, 87 KB

english, 2004

51

Clinical diagnosis of von Willebrand disease

Journal:

Year:

2004

Language:

english

File:

PDF, 96 KB

english, 2004

52

New observations on factor XI deficiency

O. Salomon, U. Seligsohn

Journal:

Year:

2004

Language:

english

File:

PDF, 66 KB

english, 2004

53

Inhibitors in haemophilia: clinical aspects

D. Dimichele, G. Rivard, C. Hay, S. Antunes

Journal:

Year:

2004

Language:

english

File:

PDF, 68 KB

english, 2004

54

Evidence-based treatment of haemophilia

P. H. B. Bolton-Maggs, K. Stobart, R. L. Smyth

Journal:

Year:

2004

Language:

english

File:

PDF, 60 KB

english, 2004

55

The impact of information technology on haemophilia care

R. I. Baker, L. Laurenson, M. Winter, A. M. Pritchard

Journal:

Year:

2004

Language:

english

File:

PDF, 118 KB

english, 2004

56

New high-technology products for the treatment of haemophilia

S. W. Pipe, J-M. Saint-Remy, C. E. Walsh

Journal:

Year:

2004

Language:

english

File:

PDF, 200 KB

english, 2004

57

Human immunodeficiency and hepatitis virus infections and their associated conditions and treatments among people with haemophilia

J. J. Goedert, D. L. Brown, K. Hoots, K. E. Sherman

Journal:

Year:

2004

Language:

english

File:

PDF, 135 KB

english, 2004

58

Optimizing factor prophylaxis for the haemophilia population: where do we stand?

V. S. Blanchette, M. Manco-Johnson, E. Santagostino, R. Ljung

Journal:

Year:

2004

Language:

english

File:

PDF, 92 KB

english, 2004

59

What is a cure and how do we get there?

M. W. Skinner, D. P. Lillicrap, J. McMillan, M. Castro Ozelo, G. F. Pierce

Journal:

Year:

2004

Language:

english

File:

PDF, 54 KB

english, 2004

60

Risks and benefits of sports and fitness activities for people with haemophilia

K. Mulder, F. Cassis, D. R. A. Seuser, P. Narayan, R. Dalzell, W. Poulsen

Journal:

Year:

2004

Language:

english

File:

PDF, 47 KB

english, 2004

61

The role of haemophilia treatment centres in providing services to women with bleeding disorders

R. Winikoff, C. Amesse, A. James, C. Lee, D. Pollard

Journal:

Year:

2004

Language:

english

File:

PDF, 109 KB

english, 2004

62

Models for psychosocial services in the developed and developing world

Journal:

Year:

2004

Language:

english

File:

PDF, 57 KB

english, 2004

63

Disease-specific quality-of-life measurement tools for haemophilia patients

E. Remor, N. L. Young, S. Von Mackensen, E. G. Lopatina

Journal:

Year:

2004

Language:

english

File:

PDF, 60 KB

english, 2004

64

Molecular basis of haemophilia A

J. Oldenburg, N. M. Ananyeva, E. L. Saenko

Journal:

Year:

2004

Language:

english

File:

PDF, 173 KB

english, 2004

65

Emerging and receding risks of therapeutic regimens for haemophilia

A. Farrugia, C. S. Manno, B. L. Evatt

Journal:

Year:

2004

Language:

english

File:

PDF, 149 KB

english, 2004

66

Product delivery in the developing world: options, opportunities and threats

Journal:

Year:

2004

Language:

english

File:

PDF, 214 KB

english, 2004

67

Acquired bleeding disorders: the impact of health problems in the developing world

P. Isarangkura, C. Mahasandana, A. Chuansumrit, P. Angchaisuksiri

Journal:

Year:

2004

Language:

english

File:

PDF, 86 KB

english, 2004

68

Inhibitors in haemophilia: pathophysiology

J-M. R. Saint-Remy, S. Lacroix-Desmazes, J. Oldenburg

Journal:

Year:

2004

Language:

english

File:

PDF, 102 KB

english, 2004

69

Comprehensive care for haemophilia around the world

B. L. Evatt, C. Black, A. Batorova, A. Street, A. Srivastava

Journal:

Year:

2004

Language:

english

File:

PDF, 58 KB

english, 2004

70

23 — Psychological and social issues

Journal:

Year:

2004

Language:

english

File:

PDF, 164 KB

english, 2004

71

24 — Rare congenital bleeding disorders

Journal:

Year:

2004

Language:

english

File:

PDF, 98 KB

english, 2004

72

26 — Safety and supply of treatment products

Journal:

Year:

2004

Language:

english

File:

PDF, 82 KB

english, 2004

73

27 — Von Willebrand's disease

Journal:

Year:

2004

Language:

english

File:

PDF, 96 KB

english, 2004

74

16 — Musculoskeletal

Journal:

Year:

2004

Language:

english

File:

PDF, 154 KB

english, 2004

75

17 — Nurses’ issues

Journal:

Year:

2004

Language:

english

File:

PDF, 84 KB

english, 2004

76

18 — Miscellaneous

Journal:

Year:

2004

Language:

english

File:

PDF, 120 KB

english, 2004

77

19 — Other treatment modalities

Journal:

Year:

2004

Language:

english

File:

PDF, 124 KB

english, 2004

78

21 — Physiotherapy

Journal:

Year:

2004

Language:

english

File:

PDF, 63 KB

english, 2004

79

25 — Rehabilitation

Journal:

Year:

2004

Language:

english

File:

PDF, 58 KB

english, 2004

80

28 — Women and bleeding disorders

Journal:

Year:

2004

Language:

english

File:

PDF, 68 KB

english, 2004

81

Regulatory challenges to global harmonization and expanded access to concentrates: how will regulators balance the increasing cost of new safety requirements with the desire to increase the availability of affordable product?

Journal:

Year:

2004

Language:

english

File:

PDF, 57 KB

english, 2004

82

Preimplantation genetic diagnosis: new reproductive options for carriers of haemophilia

Journal:

Year:

2004

Language:

english

File:

PDF, 71 KB

english, 2004

83

Dose and outcome of care in haemophilia – how do we define cost-effectiveness?

K. Fischer, H. M. Van Den Berg, R. Thomas, S. Kumar, P. Poonnoose, A. Viswabandya, V. Mathews, M. L. Kavitha, S. Bhattacharji, A. Srivastava

Journal:

Year:

2004

Language:

english

File:

PDF, 62 KB

english, 2004

84

Author index

Journal:

Year:

2004

File:

PDF, 110 KB

2004

85

Minimizing factor requirements for surgery without increased risk

S. Schulman, J. Loogna, R. Wallensten

Journal:

Year:

2004

Language:

english

File:

PDF, 91 KB

english, 2004

86

Consensus perspectives on surgery in haemophilia patients with inhibitors: summary statement

E. C. Rodriguez-Merchan, A. Rocino, B. Ewenstein, L. Bartha, A. Batorova, J. Goudemand, A. Gringeri, M. Joao-Diniz, S. Lopaciuk, C. Negrier, M. Quintana, G. Tagariello, G. E. Tjonnfjord, V A. Villar,

Journal:

Year:

2004

Language:

english

File:

PDF, 139 KB

english, 2004